Saturday, November 17, 2007

The trap I set for you

Sometimes it seems like dozens of separate events are conspiring to force me to think about one thing, chance conversations, books read and YouTube videos happened upon all focusing me on a single idea. Its odd that I think of it like this, as though there is some agency manipulating my world, even though I don't believe that the world works that way. I suppose it's part of what makes me human, the tendency to view unrelated things as part of a plan that centers around myself. Perhaps there is something at work in my subconscious, working out my opinions on things without the help of logical thought.

If that is the case today, my subconscious isn't finished, as I have no coherent opinion. I read this post today, though, and thought about prayer and the nature of God, and remembered all the things that have pointed me at this thought, and so I am writing this.

I have been realizing lately that I don't remember a great deal about my life. Perhaps this is natural, although it seems 22 may be a little young to be realizing that I'm losing huge gaps of memory; perhaps I'm just tired. Either way, it upsets me when I search for a memory and it isn't there. Yesterday (or the day before, or earlier- it all blurs together) I searched for a memory of my faith at the moment I lost hold of it, and the memory wasn't there. It makes me wonder: was it ever there? Was there ever a moment when I knew, when I stood up and declared my unbelief, when I took my fear in both hands and held on? Maybe there wasn't. I don't know.

I do remember some things, though.

I remember Josh and his black hair and ugly smile, and I remember learning that God's presence among his people doesn't affect the quality of character. I remember learning that either God isn't present or God isn't good and there is no other choice.

I remember hearing the silly excuse for faith that goes: either Jesus was a madman or he was the Son of God, and since he was obviously wise and good he must have been the Son of God. And I thought, well, what if he was instead some wise and good man manipulated into death by a God who desired to start a force of history that would get millions and millions of people killed? Maybe God thinks religious conflict is amusing. It fits the facts of history better, though it's a little melodramatic.

I remember being all fired up with missionary fervor until I realized that the Good News meant one of two things: either God condemned to death people who had never heard a damn thing about him, or it would be better for missionaries to be silent so as not to condemn those who heard and didn't believe.

I remember believing that God would help me when I needed him, all the way up to the point where I needed him, and then it was like the air was empty.

I remember knowing that God always answers prayers, with the often unspoken assumption that if all you heard was silence it just meant he was denying selfishness or foolishness. If you hear nothing, it just means he said 'no.' So I cried out to him to know if he loved me, and there was nothing. He didn't speak.

I remember being taught that perfection in Christ means the erasure of the self, and realizing that this is nothing more or less than death without eternal life.

But none of this was the tipping point. I don't know what the end of it was. Maybe I'm searching for the wrong thing, maybe I'm expecting a tense and emotional, gripping moment when really it was more of a drift, a gentle letting-go. It seems like I ought to remember, though.

Wednesday, November 14, 2007

Tuesday, November 13, 2007

I'm a digger of holes in the land

From The Bridge of San Luis Rey:

p. 6: [After witnessing the collapse of the Bridge] Anyone else would have said to himself with secret joy: “Within ten minutes myself…!” But it was another thought that visited Brother Juniper: “Why did this happen to those five?” If there were any plan in the universe at all, if there were any pattern in a human life, surely it could be discovered mysteriously latent in those lives so suddenly cut off. Either we live by accident and die by accident, or we live by plan and die by plan. And on that instant Brother Juniper made the resolve to inquire into the secret lives of those five persons, that moment falling through the air, and to surprise the reason of their taking off.

p. 134 on: Brother Juniper became convinced that the world’s time had come for proof, tabulated proof, of the conviction that was so bright and exciting within him. When the pestilence visited his dear village of Puerto and carried off a large number of peasants, he secretly drew up a diagram of the characteristics of fifteen victims and fifteen survivors, the statistics of their value sub specie aeternitatis. Each soul was rated upon a basis of ten as regards to its goodness, its diligence on religious observation, and its importance to its family group. Here is a fragment of this ambitious chart:

------------Goodness ----Piety----Usefulness
Alfonso G. ------4 ---------4 --------10
Nina ------------2 ---------5--------10
Manuel B.------10---------10--------0
Alfonso V. ----(-8)-------(-10)-------10
Vera N. --------0 ---------10--------10

The thing was more difficult than he had foreseen. Almost every soul in a difficult frontier community turned out to be indispensable economically, and the third column was all but useless. The examiner was driven to the use of minus terms when he confronted the personal character of Alfonso V., who was not, like Vera N., merely bad: he was a propagandist for badness and not merely avoided church but led others to avoid it. Vera N. was indeed bad, but she was a model worshipper and the mainstay of a full hut. From all this saddening data Brother Juniper contrived an index for each peasant. He added up the total for victims and compared it with the total for survivors, to discover that the dead were five times more worth saving. It almost looked as though the pestilence had been directed against the really valuable people in the village of Puerto. And on that afternoon Brother Juniper took a walk along the edge of the Pacific. He tore up his findings and cast them into the waves; he gazed for an hour upon the horizon of that sea, and extracted from their beauty a resignation that he did not permit his reason to examine. The discrepancy between faith and the facts is greater than is generally assumed.

p. 139: I shall spare you Brother Juniper’s generalizations. They are always with us. He thought he saw in the same accident the wicked visited by destruction and the good called early to Heaven. He thought he saw pride and wealth confounded as an object lesson to the world, and he thought he saw humility crowned and rewarded for the edification of the city.



The main theme of The Bridge of San Luis Rey is pretty evident from these quotes. Its not a new concept, looking for the hand of God in disaster. In fact, the idea is so universal, I’m tempted to say there’s something about it hardwired into the human brain: the search for meaning, the desire to understand and to control the world around us, assigning cause and effect to those events that seem emotionally significant to us.

I’ve been reading The Slacktivist lately, and Fred’s essays on American evangelicals seem relevant here. Whenever religion doesn’t sufficiently guard against it, and maybe even when a guard is kept as well as it can be, religious rituals become a form of magic, an invocation of a higher power for our own purposes rather than working toward the supposed purposes of the higher power itself. The human desire to control all of life and death manifests everywhere we let it.

I believe this is the same impetus that leads medical professionals and laypeople everywhere to believe that the sick are able to choose health, whether by prayer and piety or by practicing cheerfulness as described by Sontag. In this case, religion and psychology are two sides of the same coin, used to quell the fear that the universe is indifferent to our pain. Humans have trouble internalizing the idea that the world is large and cold and bad things happen because of causes outside our control and comprehension. Natural disasters don’t pick their victims based on piety, and illness doesn’t strike those who are more melancholy than they ought to be. People die, good and evil, wise and foolish alike, and no choice that we can make will change even a second of our misfortune.

Each of us is a speck of sand thrown about in a storm, and it doesn’t matter at all- not to the storm, not to our chances of survival- how we feel about the ride or how fervently we pray and wave our arms in religious fervor so that God will save us.

But this truth is antithetical to the form of the human mind, and so every time an illness strikes and doctors don’t know why the cause is psychological, and every time a flood sweeps away whole towns of people the wicked are being punished for their sins. This mindset blames the victims of misfortune for not ordering their minds or souls so as to avoid disaster; it's not fair to the victims to add blame on top of misfortune, but we do it. It comforts the safe to think that lives that are happy and easy and free will remain so because they are better than the ill and the ruined, so I don't suppose this mindset will go away any time soon.

Tuesday, November 06, 2007

Mukasey

There are a lot of things going on in the political scene in the United States that I find pretty abhorent and disgusting; I've written about some of them here but some of them have just passed by, because my energy for outrage is no higher than my energy for anything else. I suffer from outrage fatigue as well as every other kind of fatigue I can think of (emotional, physical, mental... is there any other kind? I'm sure there is. Anyway.) It's gotten to the point where I seriously look at all the political maneuvering and campaigning and the money and the flashy ads and think to myself, I could be happy with this if only I thought that we, as a country, were trying, even a little bit, to do the right thing.

This is more or less how I've become a single issue voter. Don't get me wrong- there are a lot of things I care about. I care about the economy, about the war in Iraq, about the Gag Rule for international reproductive health aid, about habeus corpus, ENDA, and the things I hear about how the very richest Americans are paying a lower percentage of taxes than the middle class (18% v. 30%, according to... the comments sections on blogs that I've read on the past couple days but can no longer remember. Balloon Juice, possibly.). But, to get my vote, all you have to do is proclaim loudly and believably that you strongly oppose the United States torturing confessions out of captives who have been convicted of no crime.

I really wish that I was joking, but I'm not.

You would think the country masquerading as the Good Guys in a Cosmic Battle Against Evil could be persuaded that torture was, you know, wrong. Particularly since it doesn't even work. (see A Question of Torture by Alfred McCoy for a good review of the evidence, or this article for a brief overview.) This whole absurd drama drives me beyond words; I can't even describe how frustrating I find it.

Which is why today, for the very first time since we moved to Missouri, I wrote my Senators to tell them my opinion. Michael Mukasey has passed the Judiciary Committee and his appointment as Attorney General will soon be voted on and, according to the New York Times, he will probably be confirmed. Even though everyone who cares, including most of the Senate I have to assume, has read his written testimony weaseling out of defining waterboarding as torture, weaseling out of condemning the practice, weaseling out of being a decent human being, still he is seen as fit to command the highest law enforcement post in the nation.

It makes me sick, all the more so because I know that writing my Senators will change absolutely nothing.

I'm not answering the phone- let it ring

At least the sun is shining, right? and despite the cold and the monotony and this very intense feeling I have of being lost in my head, adrift on a sea of fragmented, fuzzy memories, there is beauty in the world.







Saturday, November 03, 2007

I'll see you on the other side

I have just finished watching every single Jericho video available on CBS.com, something like 20ish episodes. Its a decent show, although watching it makes me wonder why shows like this- the 'group of ordinary people in dire circumstances' genre- always reinforce gender stereotypes so forcefully. I mean really, would it be too much to have just one woman in the town who can shoot a rifle? Shooting a rifle is well within the physical limitations of a woman. Or is the black FBI agent exactly the right amount of multiculturalism? I guess maybe I should be glad that the women were allowed to be 'strong women' as long as they stayed in their Biblically Defined Roles of nurse and schoolteacher and waiter-at-home-while-the-dashing-men-go-out-to-save-the-day.

Not that I'm objecting to dashing men, not really. And the FBI agent has the most deliciously rich voice I've heard on television in a long while; the best male voice anyway, the woman who plays Beth Turner in Moonlight has a wonderful voice also, although she over-plays hers. I think his voice is the only Southern accent that I've ever really liked, instead of just tolerated.

As a direct result of watching way too much television lately, I've got an Aquabats song stuck in my head. "Chemical Bomb" is a song that I haven't heard at all recently, despite my 20 minute search for the CD this evening. Since I couldn't find it, I'm stuck with "We Will Become Silhouettes" by The Postal Service, another soft and sweet song about war with WMDs. I remember reading stories written in the 70s that were full of abject terror about nuclear war, they were dark and difficult to read. I don't know by what mechanism this terror has changed, but it has, to the point where the most poignant art about these fears is light and resigned and listening to it, you almost get the feeling that the bright light of the explosion might be beautiful.

Not an original thought in my head

From Dead Certain: The Presidency of George W. Bush, by Robert Draper (though the clumsy use of elipses is all me):

Early on the afternoon of February 18, 1998, Bush [who was running for reelection as governor of Texas] and Karen Hughes arrived at a juvenile prison in Marlin, Texas...While the TV cameras rolled, one boy after the next recited his litany of criminality- I'm Jimmy, I'm from Mineral Springs, at the age of thirteen I did steal the next door neighbor's car and I did run over my grandma with it, which did cripple her permanently- followed by his acknowledgment that he, rather than society, was to blame and his pledge to do better.

This was the Responsibility Era personified, as Bush well knew. It was also exploitative, and he knew that as well. This prefab moment was about winning votes... when the last preselected urchin had concluded his recitation, Bush and everyone else sat there for an uncomfortable moment as if at the end of a bad blind date, searching for something nice to say about a thoroughly meaningless encounter.

A scrawny fifteen-year-old black kid raised his hand.

"Can I ask the governor a question?" said the boy, a petty thief from Tyler named Johnny Demon Baulkmon.... "What do you think about us now?"

...[Bush's] words, when he found them, sounded almost confessional: "You look like kids I see every day. And I'm impressed by the way you're handling yourselves here. I think you can succeed. The state of Texas still loves you all. We haven't given up on you. But we love you enough to punish you when you break the law."

That was the answer to the question.

A strange euphoria overtook Bush and the other adults in the dormitory. Something had just taken place here that did not ordinarily occur, either in youth prisons or on the campaign trail. A sense of institutions humanized, of possibility....

[Karen Hughes] began to work the Marlin tableau into his speeches, in language that one seldom heard from the lips of any politician, much less a conservative: "Each of us holds a piece of the promise of America. That young man at the jail in Marlin wasn't sure. He wasn't sure the promise was meant for him. He didn't know whether he still had a shot. Yet some spark was alive. He was willing to risk asking the governor, What do you think of me? He meant, Is there hope for me? Do I have potential? Can I make it? Do I own a piece of the promise of America? In the mightiest and wealthiest and free-est nation in the world, he still wasn't sure. And that's a tragedy."

(Johnny Baulkmon "still wasn't sure" for a reason, as it turned out. Some time after his chance encounter with George W. Bush, the boy was raped by another juvenile offender. Though the meeting in Marlin would become a centerpiece of Bush's nomination-acceptance speech in 2000, Baulkmon did not learn of his fleeting fame until years later. Apparently unconvinced by "the promise of America," he would become an adult petty criminal. In 2006, from a Beaumont prison visitation room Johnny Baulkmon would appraise Bush thus: "He doesn't care about anything but himself. He's complete trash, a horrible evil person.")

The Farther Shore

I recently finished reading The Farther Shore, by Matthew Eck, and I found myself wishing that I had read this book when I was younger and reading books like Ender's Game; never mind that The Farther Shore wasn't published until earlier this year.

It amazed me how this book so perfectly reproduced the way I experienced my military service. Not that I ever got stranded in a city in Africa or accidentally killed kids or even fired my weapon in fear. None of the details are the same, but the essence of it is identical. The feeling of being just yourself, not a soldier, feeling like you don't know what you're doing or what you ought to do. Feeling like the soldier on either side of you is a stranger who might not even be a person the way you are a person, who might even be a monster, mad and untrustworthy. The absence of comraderie, the absence of purpose or conviction or confidence of any kind, whether in the rightness of your mission or in your own ability to keep yourself alive.

Military fiction is often written by people who have never been to war. This book makes me wonder if maybe the world wouldn't be a better place if more soldiers spoke up about what being a soldier is really like. I don't know if it would have kept me from enlisting; maybe my own wish to be a hero would still have overridden my better judgment. I should have known from the information I had at the time that joining the Army wasn't the way to make myself into the person I wanted to be. I can't help but think, though, that the current fashionable thirst for war would be not quite so fashionable if a higher percentage of the population knew what they were asking for.

Monday, October 29, 2007

Liberty or Death

Via Balloon Juice, I saw this article about Robin Prosser, an activist for medical marijuana legalization in Montana. The article has all the details, but the short version is, Prosser had an 'immunosupressive' disorder that sounds to me like CFS with MCS. She was unable to use traditional pain medication because she was allergic, and the medications made her very ill (or, like my doctors say about me, "she was unable to tolerate the side effects"); marijuana was the only substance that improved her condition, so she used it. Since she was an activist, she was on the Feds' radar, and they caught her with half an ounce. The article doesn't say whether or not they were prosecuting, but they really didn't need to. When they took away her pain relief, Prosser killed herself.

I was hesitant to write about this, because obviously it's very upsetting. I look at this situation and it brings up a whole slew of issues that I struggle with. Chronic pain is absolutely devastating in so many ways, and it's compounded when the solutions that are supposed to make you better only make you worse. That situation would be bad enough, but then once you find something that gives you some relief, authority jumps in and crushes you again. I've read a few blog posts here and there, and the occasional commenter who laments giving up hope in the face of all the wonders of modern medicine makes me so angry and sorrowful I want to puke. It's hard to understand, if you're basically healthy, what it's like to live with a body that tortures you every second of every day, and to be unable to stop the pain.

Most people are able to live imagining that if they were ever a prisoner under torture, they would be able to hold up their head and say, "Do your worst, I defy you." I used to hold that illusion. I don't anymore; I know the truth, like Prosser knew it: there are things worse than death.

I'm reading Dead Certain, the biography of President Bush that came out a few months ago. I had forgotten that W. ran on a platform of "compassionate conservatism;" I think he may have forgotten it also, this many years later. As impossible and hopeless as it might be, compassionate government in any form, conservative or liberal, seems like a grand idea to me. Because the way the system is run these days, people in need get the message that it would be better for everyone if they were to go off and freeze to death under a bridge than to expect a helping hand from anyone. Politicians would rather appear to be protecting kids from drugs than allow someone living in hell on earth a minute of relief. Like Sullivan said, the government has come down to "protecting people from the alleviation of their own pain."

Saturday, October 27, 2007

If only I could program

Someone needs to put up an online recipe database you can search based on the ingredients in the recipes. Every recipe database I've seen is just your basic search tool where you type in a word or phrase and get every result with that word or phrase in it. What would be 100 times better would be a search system like Wowhead, where you can set up a filter based on characteristics of the item, only this would be just a basic search page with with several inputs, and instead of searching for, say, "Chicken Parmesan" you would search for "chicken breast" "onion" "apple" "garlic" and "green pepper." And instead of getting every recipe with "Chicken Parmesan" in the title, you would get recipes with your ingredients in them.


I know I can't be the only one who looks at the items in my refrigerator and just can't think what to make with them. This website would make millions.

Friday, October 26, 2007

Illness as Metaphor

I read Illness as Metaphor yesterday and today, and I would like to write about it. The most appropriate way of writing what I'm thinking may be a contrast study with The Bridge of San Luis Rey, but I don't know if I'll have the mental energy to do that. I have other things I need to write in the next week or so. However, for a start, here are some quotes from the book that I thought to be rather edifying.

"According to the mythology of cancer, it is generally a steady repression of feeling that causes the disease... the passion that people think will give them cancer if they don't discharge it is rage. There are... cancerphobes like Norman Mailer, who recently explained that had he not stabbed his wife (and acted out "a murderous nest of feeling") he would have gotten cancer and "been dead in a few years himself.""

"So well established was the cliche which connected TB and creativity that at the end of the century one critic suggested that it was the progressive disappearance of TB which accounted for the current decline of literature and the arts."

"Doctors and laity believed in a TB character type- as now the belief in a cancer-prone character type, far from being confined to the back yard of folk superstition, passes for the most advanced medical thinking."

She quotes Katherine Mansfield, who died of tuberculosis: "A bad day... horrible pains and so on, and weakness. I could do nothing. The weakness was not only physical. I must heal my Self before I will be well... This must be done alone and at once. It is at the root of my not getting better. My mind is not controlled."

"In his Morbidus Anglicus (1672), Gideon Harvey declared "melancholy" and "choler" to be "the sole cause" of TB... In 1881, a year before Robert Koch published his paper announcing the discovery of the tubercle bacillus and demonstrating that it was the primary cause of the disease, a standard medical textbook gave as the causes of tuberculosis: hereditary disposition, unfavorable climate, sedentary indoor life, defective ventilation, deficiency of light, and "depressing emotions.""

"The second [hypothesis] is that every illness can be considered psychologically. Illness is interpreted as, basically, a psychological event, and people are encouraged to believe that they get sick because they (unconsciously) want to, and that they can cure themselves by the mobilization of will; that they can choose not to die of the disease. ... Psychological theories of illness are a powerful means of placing the blame on the ill. Patients who are instructed that they have, unwittingly, caused their disease are also being made to feel that they have deserved it."

"The notion that a disease can be explained only by a variety of causes is precisely characteristic of thinking about diseases whose causation is not understood. And it is diseases thought to be multi-determined (that is, mysterious) that have the widest possibilities as metaphors for what is felt to be socially or morally wrong."


For all that Sontag's writing style is atrocious- she makes me want to tie her to a desk and force her to write outlines until she can complete an argument in a linear fashion- she does have some things to say in this piece that are very apt. I am tempted to write up a little bit about the psychological model of illness to take with me to my next appointment with the Psychologist From Hell.

Wednesday, October 24, 2007

I am the prayers of the naive

I met a psychologist at the VA women's clinic today. I made the appointment to get evaluated for the memory and comprehension/concentration problems that I've been having, but somehow it turned into this woman being really concerned about my attitude about my illness. She told me two things that really stuck out:

"The difference between acute pain and chronic pain is that with acute pain you can expect to get treatment and then not feel pain anymore, but with chronic pain it's just unrealistic for you to expect that your life is going to be perfect and you'll be pain free all the time."

and

"I work here in the primary care clinic because we've come to recognize that there is no separation between the mind and body. Your mind can really affect the pain your body feels, so I think that if we work together on your expectations for your life and your health that would be really helpful. Positive thinking can be really healing."

I've heard subtler religion pushes from Mormon missionaries on the doorstep. I seriously wish all these crackpots with medical degrees who are convinced that what I really need to improve my life is a massive dose of wishful thinking would all go jump off a cliff. Magical thinking is an incredibly seductive way of approaching life; everyone wants to believe that they're in charge of their own body and wellbeing and safety and popularity and lifespan etc. But just because you want to believe it, doesn't mean it's true. It amazes me how people who can agree with that statement in a religious context continue to believe it in a scientific and medical context.

It's enough to make me agree with the crackpot fundies who regularly freak out about New Age and relativist influence in public schools.
What is one man's and one woman's love and desire, against the history of two worlds, the great revolutions of our lifetimes, the hope, the unending cruelty of our species? A little thing. But a key is a little thing, next to the door it opens. If you lose the key, the door may never be unlocked. It is in our bodies that we lose or begin our freedom, in our bodies that we accept or end our slavery.

-from Four Ways to Forgiveness, by Ursula K. LeGuin

Thursday, October 18, 2007

Colbert 2008

A couple nights ago, Stephen Colbert announced on the Colbert Report that he's running for President, as both a Democrat and a Republican, only in South Carolina. I know it's a joke, a gimmick, something they dreamed up on the show to more effectively mock the candidates and the process of campaigning. This knowledge makes me a bit sad. I would like to live in a world where Stephen Colbert could run for President of the United States and have a serious chance of winning. I would vote for him.

The news is all over the predictable places, basically anywhere on the Internet trafficked by young, disaffected Americans. I went and joined a Facebook group, to see if people were taking it seriously. A lot of the comments I've seen are along similar lines: sure, it's a joke, but we'll write him in on our ballets just because everyone else who's running is so awful. Or as one guy said, "He's the only candidate I even like. All the other candidates are boring or clinically insane, or patently evil."

I have to say, I kind of agree. Politics is so congested right now that even people who have worked on Capitol Hill their entire lives are trying to run as 'outsiders', like Fred Thompson, or, like Barack Obama, are discovering that it's impossible to run a campaign without sucking up to interest groups and sliming your opponents. The appeal Colbert has is the same kind of appeal that Ron Paul has: you get the feeling that he really hates the entire system, and would do his best to change as much as possible. Colbert has a major edge over Ron Paul, though, because while he is a comedian he's not a gold standard/9-11 truther/isolationist nutter. Plus, when you watch his show every night you get to feeling like you have an idea who he is, as a person, and you start to think like maybe even if you didn't agree with him on everything, you could trust him to make important decisions.

I'm not ready to commit to actually voting for him in the general elections, because since I live in a red state now my vote might actually be useful, but the idea is very appealing.

Monday, October 15, 2007

Heat the pins and stab them in

One of the better things about having a memory worse than most retirees is my ability to take up hours and hours and hours watching only the television I like. I hop online and dial up my favorite show, and watch the episodes over and over, never remembering the details or the dialogue, able to watch the same 45 minutes of programming for 3 hours and still laugh at all the jokes and cry at all the tragedies. It really is great, to be able to experience things as though they were new.

Today, I watched Moonlight, a show that just came out this fall. I'm tempted to say that vampire murder thrillers are not usually my cup of tea; that's not really true though. In fact, I'm as big a sucker for melodrama as the next person, and I'm a much bigger sucker for dark and brooding heroes than most modern women. Alex O'Loughlin does a dreadfully handsome tormented hero type.

Even though I can no longer remember the details of the stories I watched, I do retain a sense of what mattered to me in what I saw. And so now I'm contemplating the nature of strength. Not physical strength, necessarily, although that has it's own place and time and is also something I crave, but rather strength of self. That which sustains endurance through the darkest times. That which keeps one moving forward when everything is lost, even when everything stays lost and there is no chance of getting it back. That which shelters and protects little seedlings of hope, when there is no hope. Strength.

I used to think I was strong. Maybe I was strong, once upon a time. And maybe, in spite of everything, I still am.

Thursday, October 11, 2007

See my shadow changing

The weather is finally turning colder and more autumnish, although cold is relative and I think some of it is just that it's not as humid, and it's breezy today. But nights are definitely getting colder, and I broke out the giant hoody sweatshirt yesterday evening. The temperature inside is only about 75 degrees, and I'm cold. I miss the days when I would keep my windows open in winter so that my room was much colder than the rest of the house, because the cold made me think easier.

The plants in my poor abused garden are doing just fine, though. They went through some kind of growth spurt, and I think one of them is planning on being a tree. In addition to the bushy types that were there originally, there's more than a few weeds, which are even more interesting. It amazes me how resilient life is, how it creeps in and sets down roots where it's not supposed to be. Raze it to the ground and bury it in the dark and still it reaches for the sun. I wish I had that kind of courage.



One of the weeds appears to be chives. It doesn't photograph well, being mostly a skinny green line, so there is no picture. But, it tastes like chives. Makes me want to grow a kitchen herb garden or something, that could be done in pots. I would bet that seeds or seedlings for herbs are even more expensive than for common flowers, though. Maybe someday.

Saturday, October 06, 2007

Treat me like the leaves

I've taken up the bad habit of using song lyrics as post titles. I used to do this on my old journal, sometimes I even made posts of nothing but lyrics to songs I was listening to. I go to write, and then I hear the words to the music in the background and all of a sudden I can't think of anything different than what I'm hearing. Music has always been about words for me anyway. I'm very strange like that.

Realized earlier today that when searching for pictures of crows on which to base my tattoo design, I had never searched for pictures of ravens. The two look rather alike, you would think that there would be a fair number of appropriate pictures. However, I found nothing new in the way of birds. I did find this picture, though, which I quite liked.

I'm not interested in a full shoulder tattoo, especially not one that goes up the neck and would be half hidden, half revealed with every single shirt I have. The tentative plan at this point is for the crow to go on my right shoulder. But I don't know. I probably won't even get it for quite a long time, both for monetary reasons and because tattoos should be thought about, anticipated before you actually get them. You should have an engagement period, so to speak.

So I don't want to get a tattoo like this one here. It's terribly pretty, though. I think the delicateness of the lines mean that it will hold up over time better than big blocky pictures do. There's less to smear, and even if it does get a bit less distinct it will still be wonderful art. It seems to suggest that I could consider something more elaborate than a freestanding bird in flight, something more detailed and nuanced than a black cutout figure. I don't know if elaborate is my style... but it's pretty.

In the course of browsing through disability themed blogs, and other blogs that are just written by people with disabilities, I've come across the term disablism (or ableism) quite frequently. The best explanation of the movement I have is this essay by a former "Jerry's Kid" poster child; the idea is that seeing people with disabilities as inherently unable to do things is foolish because if society approached the problem differently, for example spending money on accomodations instead of pure medical research, the lives of people with disabilities would be much better in the present, instead of in some possible future. Also part of this movement is the idea that many of the modern treatments of disability are marginalizing of persons with disabilities in a way akin to racism.

I've found myself having mixed reactions to this paradigm. On the one hand, I can see how it would be really important for someone who is essentially able to do many things with a little bit of help, but who is prevented because of an outward appearance of disability. If you could go to the theater and have a great time if only they would put in a lift to get you to the second floor, it must be maddeningly frustrating to have simple mechanical things thwart your plans. On the other hand, it scares me that someday there might be an atmosphere that expects everyone to be able to do everything in a 'disability friendly' building. I don't use a wheelchair, there would be no benefit from it, but that doesn't mean that I'm able to get around freely. My problems stem from pain and fatigue that are almost totally unpreventable. I can't imagine accomodations that could be put in place anywhere I'm interested in going that would make any difference at all.

So maybe this is selfish- certainly this is selfish- but I kind of think that a focus on mainstreaming disability would be harmful for me personally. If there is the expectation that disabled people can work if you just redesign the workplace, it would be even harder to explain that there are many days it takes me an hour to get out of bed, that doing anything at all on a consistent basis is liable to cause pain because it's the fact of repetition that gets me, that I function on the level of a dyslexic with ADD, insomnia, depression and narcolepsy most of the time, that there are all these things that can't be designed around that prevent me from working. I already have a hard time convincing people that I'm in physical distress; I don't look it; the expectation that I should be able to do 'mainstream' things no matter what disability I have would make my life infinitely harder.

It would be nice, though, if there wasn't a social stigma associated with being unable to work, or go out shopping or partying, or even being unable to keep one's house properly. If I can't convince myself that being unable to do these things isn't a moral failure, though, I don't see how there's any hope of convincing people who don't have to deal with this on a regular basis. Maybe if our society was completely changed, so that there was less importance placed on work and money as the measure of a person's value, so that individualism was less important and community was more important, so that there was an expectation that everyone at some point would need the help of the people around them so help should be freely asked for and freely given. Some of this reminds me of Echidne of the Snakes' posts on how modern feminism requires the involvement of men in the domestic realm, in that if this has any chance of working out, it requires that the current culture be torn down and started again from the beginning.

I'm realizing that most of my prescriptions for the problems I write about boil down to the same thing: burn it all down and start over.

I suspect that this may say something about me that isn't all that flattering.

Friday, October 05, 2007

Now we'll say it's in God's hands

I guess it's old news by now that President Bush vetoed the bill that would expand SCHIP to cover more children who currently don't have health insurance. I think almost every blog I regularly read mentioned it at least in passing; there's even a post on the ProHealth Fibromyalgia/CFS forum about it (registration required). I don't think anyone in the US would be willing to make the claim that our health care system is functional, and I wouldn't be surprised if health care was a major issue in the next election, maybe even as important as the War.

I have a hard time following the various proposals for change that have been put forward. I would like to be able to analyze the merits of Clinton's plan v. Edward's plan v. the Republican plan (do they even have one?), but every time I try to wade into the technicalities, I fall asleep after about the first paragraph. Technicalities are no longer my strong point.

However, there are a few basic ideas that I think I have a handle on. As far as theories about the appropriate government role in health care, I believe it comes down to the government either managing regulation of the industry to keep costs low or pouring money in to pay the industry for the care of poor people or some combination of the two. There are a lot of side issues, like research and development and the control of medication due to the War on Drugs, but the main issue is what government should do to make the system work.

I wish I knew the answer to this question. I guess a lot of people wish they knew the answer, because obviously no one does, or the ill would not be automatically destitute while insurance bureaucrats gorge on the last penny of the elderly and dying. I don't trust the government- I regard it with a visceral suspicion. Even if I thought it were possible for a government agency to run a really efficient and friendly and effective health care program, I wouldn't believe that's what would actually happen if the government took over the industry. But as someone who never expected to be disabled but who is almost entirely helpless now, I am even less eager to throw myself on the mercies of the market.

I can't see my way to unequivocally supporting SCHIP funding for families that make $60-80k a year. That kind of income seems like riches from where I'm sitting. I don't see how you could be poor, making that much money. And raising taxes on cigarettes seems like an especially cruel way to pay for it. If you're going to tax something that's socially unacceptable in order to make ends meet, at least be gracious enough not to tax something that's horribly addicting. Tax sugar, tax sitcoms, tax rich people's children, tax blond hair dye, whatever, don't tax something that people can't give up without medical intervention.

On the other hand, serious illness is catastrophically expensive, and all too often the expense hits right when you lose your job because you're too ill to work. Having insurance doesn't mean you're safe, and neither does Social Security. Serious illness is devastating all by itself, even without financial ruin, and it's not like the safety nets we currently have make your life easy. I regularly lurk on the ProHealth board, reading the stories of people who have fibromyalgia and aren't lucky enough to be veterans. The luckiest of people have spouses who can support them and houses to sell to pay their medical debts; the unlucky are young and alone, living in abject poverty for years in order to qualify for a measly couple of hundred dollars a month of welfare and a Medicare system that will deny them coverage for the treatments that help the most. It's heartbreaking. For all my libertarian tendencies, I believe that there should be a better system for these people. If society means anything, I think it must mean taking care of those who are unable to take care of themselves.

I guess my real opinion on the matter is that the whole system is broken, not just how we pay for medicine but how we do medicine. I would like to see a complete, from the ground up re-do of American medicine, that changes things from how strictly we control medicine to the whole concept of hospitals to how doctors are educated. In some ways, American medicine is great. Cancer treatment, for example, is one of the things that we usually do right. But so many things are wrong with it, and I don't have any expectation that changing payers will cure the deep structural problems.

Thursday, October 04, 2007

It's been unseasonably warm here lately; we don't have a temperature gauge outside, but inside today the thermostat said it was 83 so it must have been 90 or so in the sun. I love the heat, since it softens some of the muscle cramps I get, but this long summer may not be a good thing. The trees are dropping leaves without turning color, which may be usual here, I guess, though I don't really think so. What isn't usual is the green sprouting plants coming up in the garden that got mulched for winter.


It's a bit hard to see, but in the below picture, the leaves with multiple lobes are sprouting off the base of a plant that got cut off to the roots, as though it's spring and time for new growth. I suppose this won't really hurt anything as far as the plant's ability to grow back again next spring- which is silly to worry about if I'm just going to turn it into a vegetable patch anyway- but it all seems very odd and out of sync. I hope this crazy summer doesn't turn into a ridiculously long and cold winter.

It's my understanding that global warming is expected to lead not to slightly warmer temperatures year round and nothing else, but rather to greater fluctuations in weather, which would include hotter summers and colder winters and more storms. I don't know how I'm going to deal with colder winters, but I think it would be great if warmer weather combined with rising heating and cooling costs lead to great swathes of people adopting the midday siesta as a way of life. Temperature efficient architecture and sleeping during the day sound like improvements to me.

Monday, October 01, 2007

The Warrior Spirit

There's lately been a lot of talk in the blogs I read about Rush Limbaugh's comments about soldiers who oppose the war in Iraq. Media Matters has a transcript of the radio show in question, and it's clear that Mr. Limbaugh and his (second) caller really honestly believe that there is an essence of soldiery that causes a soldier to wish to kill and die- because that is what it is to fight- and also, I think, to wish to obey orders without question. This attitude is not so uncommon among other published opinions that I've read, particularly the opinions of those who support the war, but not only them.

I've encountered this idea before, but never been able to put it into words quite the way I'm thinking of it now.

I finished reading, just this morning, Wolfskin, by Juliet Marillier. One of the main characters is a Viking warrior, a devotee of Thor who lives to kill. Marillier writes of the red battle haze that takes over a berserker in the heat of combat, the insanity of blood hunger that causes men to kill without mercy, without thought for their own safety or even knowledge of what they do. These warriors were formidable in battle but nevertheless didn't live long; four or five years of service was about what they could hope for before being taken to Valhalla by Valkyries to sit at the hand of God.

This image of the Warrior is not at all like what I knew of soldiers while I was in the Army. The best of them, the ones who had seen combat, lost friends and killed, were quiet men. The sergeant who was head NCO of the ROTC program at UW who was a part of the unit that lost men at Mogadishu, the drill sergeant at Fort Jackson who was a Marine sniper, before, the Army Ranger officer in my Korean class who dropped out to deploy to Afghanistan, were all men I respected. They were dangerous and hard, and not very happy, but above all they were professional. They didn't lust for battle. They knew better; all their efforts were devoted to training, preparing, not because they loved death but because they hated it. They knew that if such a thing must be done, it should be done with skill, to keep their comrades alive and to settle the conflict as quickly and decisively as possible, for everyone's sake.

These men have more in common with my father, who is a good man and takes joy in his work, than with a Viking berserker, but I think that many people in America do not know this about soldiers. Maybe this is because of the much lamented disconnect between the military and the rest of society due to the volunteer nature of our military; perhaps its just part of human nature to be eager to see other people as alien and unlike oneself. For whatever reason, it seems to me that people who argue that withdrawing from Iraq would be an insult to the honor of our soldiers do not know what a soldier is.

I think that if everyone knew that soldiers are not death-demons by nature, the argument over withdrawal from Iraq would be very different. If a soldier is a hunger to fight for honor or vengeance, then perhaps it is right to keep soldiers in the middle of a battle that can't be won. But if a soldier is only a man with complex motivations, who is willing to fight if it is necessary but who hates to kill for no reason, then we- the people of America who nominally run this place- have betrayed them horribly.