Saturday, June 28, 2008

Cold Hard Reality

In the past couple of days I've read Molly Ivins' Bill of Wrongs and John Grisham's The Innocent Man, and I think I've had my dose of cold hard reality for a little while. But before I retreat to my hammock to read pulp fantasy novels, I just have to comment on this post at Obsidian Wings, "Unless a Solder Has a Personal Fortune...". The post quotes an Army Times articles to emphasize how little disabled vets are left with after they're discharged; it amuses me that the article gets it so wrong, like while the writer wanted to bring some light to how vets are treated, she couldn't bear to actually admit just how bad it can be. Hence, this quote:

(I)njured service members are discharged on just a fraction of their salary and then forced to wait six to nine months, and sometimes even more than a year, before their full disability payments begin to flow. (...)

Most permanently disabled veterans qualify for payments from Social Security and the military or Veterans Affairs. Those sums can amount to about two-thirds of their active-duty pay. But until those checks show up, most disabled veterans draw a reduced Army paycheck.
It gives the impression that a disabled veteran, upon leaving her military base with discharge papers, receives a reduced paycheck until the VA and/or SSA get their shit together to evaluate that veteran. And once the VA does evaluate that vet, which happens within a year, she can expect to actually get two-thirds of her active duty pay. And this is supposed to be an example of the system failing- which I guess it is. It makes me wonder if the writer even realizes that this horrible scenario of hers is orders of magnitude better than what happens to many, many vets.

Just to be clear: I have never heard of a vet receiving a reduced Army paycheck after discharge. Maybe that happens if you get a certain disability rating from the Army on discharge; when I was discharged, I got a zero rating from the military board although I was only able to work part-time at a civilian desk job at the time, and I was told that the military board often gave soldiers zeros when they deserved much higher disability ratings. The policy was to give soldiers as little as possible from the Army and just let the VA deal with them. So maybe you get a bit of an Army paycheck if you're a combat amputee or something, but your average disabled vet doesn't.

So you get out of the Army with maybe some severance pay, a few thousand dollars or so, and it takes the VA 3-4 months to get you into the system so you can apply for disability benefits from the VA, and then the VA takes a year or so to decide your claim. But the VA also has a policy of minimizing payments for disability, and so its quite likely that if the VA even admits that your medical problems are service-connected, they'll minimize your symptoms, and therefore your payments, as much as possible-or more. (The most recent example of this in the news was the hearing on VA administrators directing their subordinates to find that vets with PTSD had "adjustment disorder" in order to save on compensation costs.)

So you've been out of the military for a year, not working because of your disability, and you get a disability rating of 30% or 40%. So you appeal, but appeals don't have a time limit at the VA- they have no incentive to process your claim, so it gets tossed on a pile, and maybe a couple years later someone looks at it. If you're lucky, that someone will take the facts into account and get you the compensation you need; if you're not lucky, they won't, so you appeal again and the wait starts all over- and you're still living on $512/mo.

This is what really happens, this is how vets are really treated. It destroys people's lives and is an absolute disgrace; it irritates me that all anyone talks about are best case scenarios.

Tuesday, June 24, 2008

Ice Cream!

Many of my family members are allergic to milk. My dad is so allergic that he doesn't even eat milk chocolate, but most of the rest of us get at least a slight stomach ache from drinking milk or eating it on cereal or wev. For a long while, we used soy milk, but only my dad was willing to drink the stuff; it was horrible. And soy ice cream is just not worth eating. However, because of the recent mainstream interest in organic food and anything that can reasonably claim to be "all- natural," goat's milk is available even in the local mainstream grocery store. Goat's milk isn't exactly as tasty as cow's milk, but I like it much better than soy milk, and, most importantly, its creamy enough to make decent ice cream.

I made some vanilla-cherry ice cream first, but I don't have pictures from that batch. This is the peppermint ice cream that I made on Sunday. Once enough ice has been frozen to make another batch, I'm going to make some more, either mango or plain vanilla. The thought of making just plain vanilla ice cream is a bit sad, but my dad likes it so I'm considering it. He likes mango too, though, so we'll see how inclined I am to stand up and chop up mangoes into little pieces when it comes time to make the next batch.

I smashed up pieces of peppermint candy to toss into the ice cream.

My mum's ice cream machine is about 30 years old. It still works great, though.

I made a half batch so it wouldn't overflow the top before it was churned enough to be creamy. Even using whole goat's milk isn't quite as creamy as using heavy whipping cream (go figure), so the longer it churns, the better.

Saturday, June 21, 2008

the liquid that we're all dissolved in

AiG's Ken Ham on PZ Myers:

What’s he so worked up about anyway? If he’s right, God doesn’t exist—so prayer can’t do anything and, therefore, can’t harm anything. But, then, who cares about harm in a world without moral absolutes? It’s the survival of the fittest; so, evolution will inexorably eliminate these weak-minded “idiots” at the Pentagon. If they nuke some people along the way, so what? That’s just the death of the weakest in this purposeless accidental existence of ours; sooner or later the more fit will triumph, and the world will be more evolved. So, what’s Myers concerned about? This is all just time and chance and the laws of nature at work. What is, is. There are and can be no “oughts.”
This is a fairly common concept in American culture: those who reject God also necessarily reject all morality and concern for other people. I have heard people claim that atheists are unable to love their spouses, parents or children, and like Ham here suggests, atheists ought to have no problem with just killing people at random for no reason. In fact, evolution demands that anyone who admits that people evolved actively desire the murder of those "less fit" in order to continue the evolution of the race toward a better goal. Nevermind that this kind of teleological view of the world is a profound misunderstanding of what evolution is; the implication that I'm some kind of murderer just because I reject Jesus, well, it irritates me.

There is this concept in philosophy- I encountered it while studying linguistics- called Theory of Mind, which is essentially the ability to imagine that other people have minds much like one's own even though you can't directly experience another's mind. Without this, much of social interaction including things like language and commerce would be completely impossible; it is the basis for all of society, and all neurotypical (and at least almost all a-typical) humans have it. Empathy is a closely related ability.

Religions tend to disguise it, with ceremonial laws and proscriptions against things that are said to offend God although they hurt no one, but they can't disguise it completely: the theory of mind is the basis for morality. "Do unto others as you would have them do unto you," and "Love your neighbor as yourself," are not concepts that must be revealed in a holy book, they are accessible to everyone with a human brain, simply because we are able to imagine what it might be like to be another person. Morality doesn't require divine intervention, or supernatural woo, or special revelation. Religion has added those trappings onto what everyone is able to know: if you want to know what is right, consider how your actions affect those around you, weighing the effects on others with the same seriousness as the effects on yourself.

Empathy is a scary thing; it is often painful and frustrating to put yourself in someone else's place, especially when you don't have the power to change the things that are causing that other person pain. It takes a great deal of effort to learn someone else's history, to understand all the forces at work in someone else's mind. And when your actions affect whole swathes of people, the determination of what is right is very complicated. Morality isn't easy or simple, but it doesn't require the supernatural.

Religious people who insist that divine revelation is the only source of morality either have such an atrophied sense of empathy that their understanding of morality has withered, or they are deceived and are trying to pass that deception on to others. Or both, I guess.

Thursday, June 19, 2008

A short, ugly dose of political reality

So the Supreme Court recently decided a case, Boumediene, regarding the rights non-citizens detained at Guantanamo Bay have to challenge their detainment in court. Pretty basic habeas corpus stuff, and I think the decision was made correctly: the Supreme Court ruled that in fact our government does not have the right to hold people indefinitely without charge. Western civilization has acknowledged this right for at least the past, what, 800 years? (Wikipedia says since the 12th century) and I'm glad we're not going to throw it out just yet.

Of course the neocons are freaking out. Glenn Greenwald has a nice bit on John Yoo's take on the case; the best quote is "It takes an indescribably authoritarian mind to believe that one's own Government should have the power to put people in cages for life without having to provide them any meaningful opportunity to prove that they did not do what they are accused of." Yoo, apparently, like the rest of the Bush administration, is just that kind of authoritarian mind.

McCain, too, disagrees with the Boumediene decision. Here's Time's reproduction of his campaign's official statement. The core of it is this quote: "The United States Supreme Court yesterday rendered a decision which I think is one of the worst decisions in the history of this country."

John McCain's America is one where the government can put people in prison for life without any kind of trial or court action. His statement against Boumediene is a statement against the founding principles of the Constitution and is against everything our nation stands for. Maybe its hyperbole, but I'm strongly tempted to say that anyone who votes for this man is a traitor, and I find it greatly distressing that he is a major candidate for President.

Wednesday, June 18, 2008

J's cat's kittens






They're almost two weeks old, most of their eyes are most of the way open, and they're starting to get feisty although of course they're not strong at all yet. When they're in their box they totter around on wobbly legs, crawling all over each other, but for some reason when you hold them up in the air to take their picture, they cry. They won't look at the camera any other way, though: they can't hold their heads up consistently yet. I'm sure it will only be a couple of days before they're out and about causing trouble, though. These kittens have been growing up awfully fast.

Sunday, June 15, 2008

far away, the thudding of the guns

I used to memorize poems sometimes, just because I wanted to know them. I think maybe I will see if I can memorize this poem I read today. Sassoon was never a favorite of mine, but this poem is quite striking.


The Death Bed, by Siegfried Sassoon

Saturday, June 14, 2008

Some Pictures from the Trip

Some people say South Dakota prairie is boring, but I have to disagree. The way the wind blows the grass makes it look like the ground itself is alive.


The hills in Wyoming reminded me of Brokeback Mountain, and I teared up, again. I'm such a sucker for sad stories.

Montana was a bit colder than I expected- that's snow on the hills there.

And even more snow!


I love the Decemberists, so when I saw Tarkio's namesake I had to stop.

Turns out Tarkio is on a river that is absolutely gorgeous.


I believe this may be the Columbia River. There was a turnout by the highway with this incredible vantage point. The eastern Washington desert is just brilliant.

You know you're home when the trees are bigger around than you are tall. Also when the temperature drops and everything becomes shrouded in mist. Western Washington's climate is a real downer, but it does produce some beautiful landscapes.

Saturday, June 07, 2008

A Gorilla on the Road

There was this post for BADD, by Mary at This Is My Blog, comparing having a disability with having a gorilla living in your house with you. I find it a very apt description of the process of "taming" your illnesses and injuries until you're able to cope with them in a practical way. Anyone interested in a vivid illustration of what it means to cope with a disability should read that post.

I think in the past year I've come along way in managing my life. It's helped that I haven't been putting pressure on myself to go out and get a regular job and fit into a regular life; in some ways getting the Voc Rehab people to admit that I'm not rehabable has improved the quality of my day-to-day life. I've been able to allow myself to slow down and take all the time I need to get places and do things, but more importantly, I've changed the things I try to do.

And now it's summertime, the time I feel the best, and I'm contemplating taking my new openness to life onto the next level. I've written here before about my desire to travel, and about my poverty due to the VA's denial of the reality of my condition, and now these two things have come together fortuitously. My husband and I will soon be out a place to live due to various factors, and my tentative plan is to start a grand journey, camping out of my car and exploring the world a little bit at a time. My gorilla and I are going on the road.

First stop will be my parents' house outside of Seattle, possibly for several weeks, and then I hope to head south. The trip from here to Washington will take me several days; its my trial run to make sure that I can actually handle sleeping in the back of my VW and driving around strange places without getting too stressed out. Maybe the trial run will fail and I'll be stuck living in my parents' attic or something, but I have high hopes, and faith in my hard-won coping skills.

I also hope that this may help my husband. Quite frankly, while I have made friends with the gorilla in our house, he hasn't. It would have never occurred to me, before, that the person with a seriously life-altering physical event could adapt to the changes in their life better than someone who just has to sit and watch the person affected. But a gorilla in the house fixated on your housemate is still a gorilla in your house, I guess, and he's had a hard time. I hope that giving him some time where I'm not sitting around being sick at him may help him out.

I realize that all my high hopes may be a little foolish, brought on by sunny days and a desire to choose to be optimistic, but even if things go horribly wrong, I'll still have a nice visit with my family and some neat photos to share when I get onto a computer again. My sister's cat had kittens like two days ago, so when I get there they'll be a week and a half-ish old. Honestly, I'm about as excited to see those kittens as I am to see the rest of my family, how sad is that?

Sunday, June 01, 2008

Remembering Discrimination

I have this theory about how people remember pain, and how those memories are recalled and used in daily life. I've written about it at length here, but basically the idea is this: pain is a traumatic experience that would harm the mind if it were remembered clearly, so the human brain regularly blurs the memory of pain so that it is more remote. Its easy to remember the fact that pain is unpleasant and distressing, but its not at all easy to remember the actual sensation. My evidence for this theory is both my own experience with chronic pain- which is difficult to remember even when I experience it every day- and also signs in the relatively healthy population that indicate that people don't remember the pains they've encountered in the past, things like drug laws that severely punish chronic pain sufferers, doctors who consider a set amount of daily pain to be perfectly acceptable and not worth treating, people who are otherwise compassionate who just assume that chronic pain sufferers choose not to engage in certain activities simply because they are lazy, and so on. People act like they have no idea what pain is, because they really don't remember it when they aren't experiencing it.

I have a more tentative corollary to this theory: discrimination is like pain in that it is a traumatic experience that is difficult to understand unless you are currently on the receiving end of it. I used to be pretty sure that this was true, but now I'm not as sure.

My evidence in favor of this theory was my experience with disability rights activism. As I've said before, my acceptance of my disability has transformed the way I see the world, my place in it, and the place of other people. I have a stronger sense of the goods of society, which includes a much better understanding of all the ways those in power discriminate against out groups on the basis of race, gender, religion, etc. I understand sexism and racism better because I understand disablism. Obviously there are differences between various outgroups, and there are a lot of ways in which being female, or being gay, or being Latino, or whatever, is not at all like being disabled. But I think that, for example, understanding the ways in which being seen as a "good" crip (that is, inspiring but not socially challenging, asexual and passive and dependent) is just as marginalizing as a negative stereotype, helps me understand how being seen as a "good" woman (that is, motherly and submissive, pretty and a good cook) can be just as marginalizing as negative stereotypes of women. And I think that knowing the cost of trying to "pass" for perfectly healthy helps me better understand what it must be like for a homosexual person to "pass" for straight: not only is there the cost in physical pain, but I have to avoid talking about most of what my life is like, hiding the things that are important to me for the sake of the social comfort of the person I'm talking to. Obviously it's not the same. But I think its similar, and while my understanding of discrimination in all it's forms certainly isn't perfect, its better than it used to be.

The thing is, though, that political events of the last few months have clearly proven to me that experiencing discrimination yourself doesn't necessarily bring understanding of the discrimination that anyone else experiences, even if you understand what is going on in your own situation. When the Democratic primary races started, I assumed that in general people who voted Democratic would think more or less along the same lines I do: people who experience discrimination on whatever basis have more in common with each other than with people who don't experience discrimination regularly. So white women are more likely to have philosophies and voting patterns in common with minorities than with white men. And as far as I know this has traditionally been the case (although its not like I'm an expert on election history). The Democratic party is the party of women and minorities and the poor and those marginalized on the basis of religion or gender or any damn thing, right?

But it seems like I was wrong. It seems like there are a lot of people out there who think that the best way to achieve power for their particular marginalized group is to crowd out anyone else. There is a particularly nasty video making the rounds of a Hillary supporter making racially based arguments against Obama, and the Hillary Sexism Watch at Shakesville is up to installment #104. All this infighting makes me think that I am entirely wrong about the instructive value of discrimination. Maybe its just that you have to chose to learn, and then you have to chose to generalize from your own experience to others' experiences. Maybe we're just not brave enough to empathize with others who are in pain.

I also don't think that this is likely to work, as a political tactic. I mean, as a chronic pain sufferer, if I want to accomplish a political goal like, say, increasing funding into research on pain and brain function, my best bet is to include everyone who suffers into the same coalition. When it comes to policy and social movements that benefit those with chronic pain, there is no difference between people with arthritis, people with migraines, people with phantom limb pain, people with fibromyalgia, or people with diabetic neuropathy. I believe it is the same for those who are trying to fight discrimination. We all have the same goals, and forcing divisions does no one any good.

Friday, May 30, 2008

dumbstruck with the sweetness of being

My sleep is all messed up again, so this morning at about 5:45, as the sun was just starting to shine through the haze on the horizon, I took a walk around the block with my trusty camera. I took fewer pictures than I would have liked, since apparently civilized people get up and go to work as the sun rises, and I thought I might get caught examining someone's garden as they came outside, and I chickened out.

Here's a few of my favorites though. I really am fortunate to live in a place where people have space to grow gardens; well, I suppose I'm fortunate to live anywhere at all.





Thursday, May 29, 2008

With all the poise of a cannonball

I have been reading a book of short stories by James Tiptree, Jr., aka Alice Bradley Sheldon, science fiction author and gender-bender extraordinaire, Her Smoke Rose Up Forever. Tiptree included gendered themes in most of her stories, and its got me thinking about this idea that women are innately less violent than men.

Also, it was just memorial day last Monday, and I have been watching the first couple seasons of Battle Star Galactica, which has introduced me to the indomitable Kara Thrace. I'm not sure I will be able to finish watching BSG, I'm that in love with Thrace, and the President, and all the other women in that show who love to fight. Seeing such a positive portrayal of war, and particularly female soldiers, just about breaks my heart with the desire to be a soldier.

Its crazy, I am aware of that. I hated the Army when I was enlisted, I hated being ordered about by incompetent people half as smart as I was, and even if I was completely physically fit there are a dozen other reasons why I could never join the military again, starting with my disgust for the war criminals at the top of the chain of command and working out from there. Nevertheless, there is this tug on my heart that is hard to explain. I want to fight.

The human urge to destroy is discouraged in women, we are supposed to be nurturers and care-givers and all that, but I don't believe that this is a biological fact. Were the social pressures reversed, I am convinced that women could be-and are- just as vicious and destructive and violent as men are supposed to be. No one human is immune from the desire to kill.

So, as compelling and interesting as Tiptree's stories are, the Memorial Day piece (or piece that I read on Memorial Day anyway) that made the biggest impression on me was this article from 2 Dinar, The Casualties of War:

In reality, I was, and remain, wracked with guilt and insecurity- different than survivor’s guilt and far less noble. This is the guilt of leaving to pursue another career when the Corps needed strong leaders like me. The guilt of not having gone all-in when gambling with my life; of not having been catastrophically injured. The guilt of not having killed and the guilt of not living with the timeless veteran’s regrets about his killings. The guilt of being indifferent to the hundreds of opportunities available to me because they all bored me and all I wanted to do was fight.
War is a powerful thing, sweet and compelling. I'm not sure why- I have a dozen theories, about population pressures and sin, ecological change that spurs migration and religious stereotyping- but the fact remains. In spite of everything I know about how life ought to be, sometimes what I really want is a situation where I can get away with starting a fight.

Saturday, May 24, 2008

Count every beautiful thing we can see

Elizabeth asked her readers- her friends- to go out this weekend and do something living. I scrounged up some batteries for my camera and went to the park. I got some really crappy pictures, and this one.


These plants are dry and brittle and brown. Dead.

When I uploaded this photo and saw it full size, I was reminded of this piece of art, a sculpture by Richard Johnson titled "Parasite (The Thing Within My Spine)." Wheelchair Dancer pointed me to this exhibit of artwork on pain, and I've been meaning to write about it in terms of the success of the representation of physical pain in art, but I've been putting it off because although most of the art in this exhibit is very good, only a couple pieces even come close to actually evoking physical pain. This sculpture is good- seriously, go look at it, read the artist's description- and I love that this photo resembles it, because in this photo Pain is Beauty.

I need that today. I guess this doesn't really fit the directive to go out and do something fun; this post is fundamentally depressing. But, my head feels like I've been run over by something larger than a golf cart but smaller than a semi-truck, my throat is on fire with heartburn and the antacids are doing nothing, my hands are bruised and aching, my neck is radiating pain down to my lower back, my hips are out because I walked around the park this morning, and like a goddamn idiot I went and got a massive sunburn on top of everything else. I am the incarnation of pain, I am panting with it, and in this picture pain is elegance, delicate and architectural.

Friday, May 23, 2008

Subodhani

I've written a lot on here the past couple of months about religion, and my generally negative view of the whole deal, so I though I would mention something to balance that out a bit. Although I don't believe that religious stories about the world are true in some larger, factual sense, that doesn't mean I don't see any value in telling these stories. Religious ideas can motivate people to horrible cruelty, but they can also motivate kindness and wisdom. One of the more common instances of this is when people use religion to focus the impulse to help other people. Religious charity is sometimes an excuse to bribe or coerce people into accepting a religion, but not always.

One of the better examples of this is World Vision. They are explicitly Christian; you can donate money to them specifically for the purpose of distributing Bibles and so on, and their newsletters are chock full of Bible verses. But they also do things like distribute emergency food aid in disaster areas, and support long term development in impoverished areas worldwide by building schools, roads, medical clinics, water pumps, and giving out micro loans and small business training/advice to help people start businesses. There are secular charities that do these things, too. But I would hate to see the world deprived of even one organization that gives people practical help to improve their lives, and in this case religion is what drives this charity.

I sponsor a kid through World Vision. She turned four a few days ago, lives in a village in Sri Lanka, and is pretty much the most adorable thing in the world. Today I figured out how to get her picture online, hence this post!


Subodhani K.

Disability and Citizenship

(This is sort of for BADD, except that was a month ago. Clearly, I'm much too slow for the internet.)

I am an anarchist at heart. It is an impulse that goes deeper than rational thought; I don't know how it got there, but it is definitely lodged somewhere deep in the back of my brain, this idea that the essence of government is coercion, which is immoral. Perhaps this is the result of my rejection of the paternal God of my childhood, perhaps I simply read The Moon is a Harsh Mistress at too impressionable an age, but whatever the reason I am an anarchist.

I am suspicious of government in all its forms. Even when I know, rationally, that governmental power is required to accomplish a good goal, the incarnation of government irritates me. Sweating pot-bellied men in orange vests on the freeway demanding that everyone drive 45 mph, incomprehensible instructions on tax forms that make my eyes blur painfully, impersonal and disinterested bureaucrats at the Social Security office or the DMV who make you sit in a hard plastic chair waiting for your number to be called while they go to lunch: I hate it all. This morning I read that the improved GI Bill had been passed in the Senate with a veto-proof margin, and even though I am strongly in favor of social support for veterans I still cringed when I saw that the bill passed because it was attached to all kinds of other government spending, because the fact is, you could show me that a spending bill was perfectly efficient and effective in funding only good programs, and I would still be uncomfortable with the amount of money and power that was being funneled through the government. I'm an anarchist, I can't help it.

I used to assume that my gut reaction to government was evidence that government was actually a bad thing. In my freshman year at college, I worked on a campaign for a Libertarian Party candidate for state Rep, and in 2000 and 2004, I voted for the Libertarian Party ticket from local city elections to President. Any agency monitoring my library records would have put me on a watchlist: I read things on tax protesting and survivalism, Ruby Ridge and basic bomb making (I was just curious, I swear), secession and how to obtain official citizenship from obscure countries in the South Pacific that will give you a free passport and let you do just about anything you want.

I still think a lot of this stuff is very interesting. A few months ago when there was news about parts of the Lakota Nation filing papers to revoke the treaty they signed with the US a hundred or so years ago and effectively secede, I was cheering them on. I'm pretty sure now, though, that whatever my gut feeling on the matter is, any kind of social structure requires a government with coercive power- a monopoly on violence as anarchists are so fond of saying- in order to remain stable. And although I still feel that coercion is wrong even if a majority approves it, I think in most cases coercion in the form of taxes, regulations, and government-provided services is actually a lesser evil than pure individualism.

The thing about anarchism is, to the extent that it is asocial, its very foolish. When you're young and healthy and idealistic, its possible to believe that you can transcend society. But you can't. Not even a pseudo-Aspie like me can ever really truly be alone; everyone relies on other people. As soon as you have two people in the same space, you have interactions between them, compromises and annoyances, all the things that make up a society.

Societies can't be avoided, so they must be managed. The anarchist says that societies don't need to be managed by any authority: they will organize themselves along natural (usually economic, either free-market or communist) laws. But people don't really work that way. When I was healthy I could believe that people would naturally help those around them if they saw that there was no other social safety net to help the helpless. I really believed that there would be enough people who cared on a personal level that no coercion would be necessary, that the impulse to charity, which is very real, would be enough to make society a friendly place.

Obviously I was naive. It took illness to teach me that without law, enforced literally if distantly with the barrel of a gun, society is more than happy to take from any productive person as long as she can work and then when she can't fit into a pre-formed space in the economic machine toss her out on her ear to die cold and alone. People do have good in them, but, as any starving child in Africa can testify, out of sight is out of mind and society works to maintain the comfort of the many by hiding the pain of the few. Before I got sick, I didn't understand the reality of living with illness, so I didn't understand the role society is able to play in making life accessible to the ill, and I didn't understand how difficult and necessary it is to channel the impulse to charity through society into actual physical benefits for those who are in need.

Anyway, this is really long and possible a bit incoherent. The point is, at heart I'm still an anarchist. My votes, though, go to Democrats, and although I may cringe at the veterans' benefits/spending bill that was passed the other day, I know intellectually that this bill is a good thing, because I am disabled, and being disabled has made me a better citizen.

Thursday, May 15, 2008

Our Dear Leader

I've seen this a lot of places on my reading list lately: Shakesville, ginmar, Sadly, No!, Obsidian Wings just off the top of my head- I guess it's a popular news item this week. I don't really have anything new to say about it that hasn't been said better by others, but I couldn't resist adding my voice to the chorus.

It amazes me that at this point anyone can sincerely think that President Bush deserves to finish his term in the White House instead of in a dank prison cell somewhere. Well, I guess you could make a decent argument for incarcerating him in a high-security mental ward, since there's evidence that the man is clinically insane.

Here's the quote, via Politico, the site that did the interview:

For the first time, Bush revealed a personal way in which he has tried to acknowledge the sacrifice of soldiers and their families.

“I don't want some mom whose son may have recently died to see the commander in chief playing golf,” he said. “I feel I owe it to the families to be in solidarity as best as I can with them. And I think playing golf during a war just sends the wrong signal.”

Bush said he made that decision after the August 2003 bombing of the United Nations headquarters in Baghdad, which killed Sergio Vieira de Mello, the top U.N. official in Iraq and the organization’s high commissioner for human rights.

“I remember when de Mello, who was at the U.N., got killed in Baghdad as a result of these murderers taking this good man's life,” he said. “I was playing golf — I think I was in central Texas — and they pulled me off the golf course and I said, ‘It's just not worth it anymore to do.’"


He gave up golf. To "be in solidarity as best [he] can" with the families of soldiers who've died in the war he started for nothing, with the soldiers who will spend the rest of their lives dealing with prosthetic limbs and phantom pain and life-altering nightmares of death because of his ignorance and incompetence and vanity, he gave up golf.

Fuck.

Tuesday, May 13, 2008

You know these days no one's exploited

I'm not a very good blogger; I missed Blogging Against Disablism Day, and now via Elizabeth I see I've missed Blogging for CFS/ME Day, which is too bad, as I swear I have intelligent things to say about disability and particularly about CFS.

I'm not going to talk about disability today, though. I'm going to talk about Lolita, and radical feminism, and what it's like to believe a certain idea is true.

I go to a book discussion group at my local library. We meet once a month, about four or five conservative, oldish women and me, excessively butch and progressive ; this month's book was Lolita, which of course is the story of a young girl and the pedophile who maneuvers himself into the role of her stepfather and then takes off across the country on a road trip designed to facilitate her repeated rape. And then he murders the guy who (sort of) helps her escape.

Its a horrible story, but the discussion was pretty interesting. Nabokov was a fabulous writer, so there's all kinds of literary allusions, metaphors and tricks to dissect, and the story of course raises all kinds of questions about the nature of insanity, evil, and sex. There are details throughout the book that hint at a story behind the story; I believe the literary device is called the 'unreliable narrator.' So the book group was a good time, but we didn't get into the aspect of the book that I thought was most interesting, which was the problem of consent to sex in a coercive, dependent relationship.

Although Nabokov doesn't necessarily accept it himself, he puts in the mouth of his protagonist the idea that the child Lolita, at age 12, seduces a grown man out of her own free will. This is what the term lolita has come to mean: a sexually cunning girl child who aims to seduce adult men.

Of course the legal standard is that it is impossible for a child of twelve to consent to sex, and I rather think that this is correct. However, when Lolita is only a bit older than the age at which she is said to have seduced Humbert, she runs away from him while on a trip. And I got to thinking, if I approve of a life-changing decision like choosing to run away from the only support you have, in a state you're unfamiliar with, without any money, what is the basis for my rejection of the idea that someone of that same age can consent to sex? Because if running away is an acceptable thing, the issue is clearly not one of mental competence or the ability to make wise decisions. So what is it about sex that makes me so sure that a twelve year old can't choose to do it?

I don't usually consider myself to be a radical feminist. I haven't even read a lot of the philosophy behind radical feminism, but my contemplation of this question makes me think that I probably ought to start reading Dworkin and whoever else wrote on this question back in the day, what I guess is called first-wave feminism. Because I suspect that the answer to why I think sex with children is unacceptable lies in the balance of power between adults and children. Children are dependent on their adult caretakers. No matter what permutation that relationship takes, a child can never be sure that she has power of any kind. A child's "no" is often meaningless, and I think this is the key to why I think a child cannot consent to sex. Of course, from what I know at least (my knowledge of Dworkin is heavily reliant on blogs like I Blame the Patriarchy, which isn't meant to be a course in philosophy, so what I know may not extend very far), one of the key tenets in the "sex-negative" school of feminist thought is that women can't consent to sex while a patriarchal society that denies women the ability to meaningfully refuse sex persists.

I'm not ready to subscribe to the idea that all heterosexual sex is rape- I think there has to be room somewhere for the unique dynamic between two people that may negate the effect that culture has- but I think I finally see where that idea comes from. Feminism is not something that comes naturally to me, not really. I don't really feel patriarchy in my gut. I believe that patriarchy exists because I've seen its effects often enough that I'm convinced that its a real phenomenon, but I don't really feel it on a close, personal level even when those effects are a part of my life. Its too easy for me to assume that the way both men and women interact with me is influenced by other things- my illness, my personality (which borders on Aspergian) - for me to automatically think that patriarchy in my life is really patriarchy. Reading Lolita has been like opening a window, and I think now I understand a little bit better what it means to be a woman in the twenty-first century.

Monday, May 12, 2008

By land, by sea, by dirigible





I got my paraffin melter today, a nice young UPS man brought it to my door, but it was a bright and beautiful day even before that. In spite of everything, I'm so glad to be alive.

Sunday, May 11, 2008

I am the stuff of happy endings


Arches National Park, Utah


Goblin Valley State Park, Utah

Quite a few years ago, my family and I visited Moab, Utah. Possibly more than once, for probably more than a week- I don't remember exactly. I've been thinking, though, that it would be neat to go there again. The past couple of weeks we've been packing up stuff in this house so that we can have a giant garage sale, clearing things out so the house can be sold. Grandma is finally accepting that she needs to live in assisted living care, so the house is going to pay for that, which means Michael and I are out a place to live.

Things are kind of dissolving into chaos at the moment, but I'm oddly OK with it. Its occurred to me that not actually having a place to live might be just the excuse I need to take the roadtrip of all roadtrips. Not that gas prices this summer are conducive to roadtripping, but the idea of just taking off and seeing where I end up is incredibly enticing. And if I were to do this, I would go to Utah first I think. I could sleep in the back of my car, and spend days slowly creeping about these gorgeous canyons, maybe bring a sketchbook and work on pretending I'm an artist.

The practical, responsible me thinks that this is a very bad idea for any number of reasons, but on the other hand, it's not like I have a job or anything holding me to a specific place. I am interested in seeing the world, and although I am sick and poor these days, I don't have any particular reason to think that I will be less sick or poor five years from now, so if I'm going to travel anytime, why not now?

Wednesday, April 23, 2008

I wish it was the sixties

Its one of those days where everything seems wrong, and since I can't do a thing about the real problems I have, I try to concentrate on the small, ordinary tasks in front of me. I find that the best therapy for helplessness is to reach out and touch something real: plants in the garden or dirty dishes or yarn on a needle. Physical objects are both more solid and more malleable than fears about the future, more solid than pain or fatigue or worries about money.

Whenever a doctor reads my medical records and sees that I've been diagnosed with depression, they try to refer me to counseling, and I have a hard time explaining why I have no desire to go. Talking about things does make you feel better, but it can only help so much when your problems are genuinely unchangeable. No one can take away the pain I feel, and no one can make the VA give me the benefits to which I'm entitled; talking about things won't change that a bit, but talking is all the help that doctors ever offer.

Completing tasks that decrease the amount of entropy in my immediate environment is my primary method of coping. What I mean is, I plant seeds and knit sweaters because changing some small thing so that its different than it was before is a way of affirming my connection to the world, to life, to happiness. I put my world in order to prove that some things are improvable. I hate to assume that anyone is reading this, but if you see this and have a particular coping mechanism that you've more or less invented on your own, it would be neat to hear about it.

I completed the finishing on two sweaters in the past couple of days, and filled the tires of my bicycle this morning. I'm going to teach myself a new knitting pattern here in a bit, and things are growing in my garden. For now, the sun is shining, and I took some pictures.



Saturday, April 19, 2008

Living with Darwin

Christian resistance to Darwin rests on the genuine insight that life without God, in the sense of a Darwinian account of the natural world, really does mean life without God in a far more literal and unnerving sense. Even those who understand, and contribute to, the enlightenment case can find the resultant picture of the world, and our place in it, unbearable.

...For many Americans, their churches, overwhelmingly supernaturalist, providentialist churches, not only provide a sense of hope, illusory to be sure, but also offer other mechanisms of comfort. They are places in which hearts can be opened, serious issues can be discussed, common ground with others can be explored, places in which there is real community, places in which people come to matter to one another- and thus come to matter to themselves. Without such places, what is left?

…There is truth in Marx's dictum that religion, more precisely supernaturalist and providentialist religion, is the opium of the people, but the consumption should be seen as medical rather than recreational. The most ardent apostles of science and reason recommend immediate withdrawal of the drug- but they do not acknowledge the pain that would be left unpaliated, pain too intense for their stark atheism to be a viable solution. Genuine medicine is needed, and the proper treatment consists of showing how lives can matter.


- Living with Darwin: Evolution, Design, and the Future of Faith,
Philip Kitcher

Kitcher’s Living with Darwin is as elegant a defense of evolution against Intelligent Design as any I’ve read, and I recommend reading it if you’re interested in the subject. The part of the book that I most valued, however, was his conclusions about the place of religion in a society that accepts scientific reality. Kitcher describes two variations of religion; the first is “providentialist” religion, which is based on the idea “that the universe has been created by a Being who has a great design, a Being who cares for his creatures, who observes the fall of every sparrow and who is especially concerned with humanity.” The second variation is what he calls “spiritual” religion, which doesn’t rely on any description of the supernatural, but is solely concerned with the state of one’s mind and one’s relationship with others.

Kitcher, who, by the way, is a professor of philosophy, makes a strong case for the incompatibility of providentialist religion and current scientific knowledge, but, unlike a lot of what I’ve been reading lately on the subject of science, he doesn’t take that to mean that people should resign themselves to being without the comfort of religion. His entire essay is a wonderful argument for reinventing religion as a primarily social phenomenon, concerned with the present, not stories about the past or future.

His final few paragraphs, about the idea that “religion is the opium of the people,” got me thinking. There is actually quite a bit of similarity between the way I face physical pain and the way I think about religion. A lot of people with chronic pain try to keep positive by telling stories about the possibility that in the future they will recover; doctors recommend techniques to distract the mind from focusing on pain. Avoidance is a common coping technique, and when it comes to pain, it’s a perfectly healthy one, but I find that it does nothing to make me feel better about being in pain.

The best way I’ve found to stay positive is actually to spend a little time focusing on the pain, feeling exactly how and where it hurts, falling into it to see if, this time, I will be overwhelmed. I do this, and I find that, as bad as it gets, I can endure it. I may moan and cry, but when it comes down to it, I am able to make the choice to live in pain, and I find that strength an incredibly positive thing.

I think this is very similar to the way I refuse stories about the world that offer a more comforting version of reality. I want the world as it is, no matter how much it hurts. And its kind of funny that I can see how odd I am when it comes to my pain coping techniques, but I’m inclined to expect that everyone will react the same way I do to the conflict between religion and science. Reading Kitcher makes me think that it may be more important to carve a place for the religious impulse in science than is obvious to me.