Sunday, July 27, 2008

Warm rain on drooping roses; pattering showers


That soak the woods; not the harsh rain that sweeps
Behind the thunder, but a trickling peace,
Gently and slowly washing life away.


Its raining, and I am in pain. My brain is a bit switched off, so here are some photos of my father's garden.




Friday, July 25, 2008

What I Know, Part 2

What a beautiful face
I have found in this place
That is circling all round the sun
What a beautiful dream
That could flash on the screen
In a blink of an eye and be gone from me...

And one day we will die
And our ashes will fly from the aeroplane over the sea
But for now we are young
Let us lay in the sun
And count every beautiful thing we can see...

Can't believe how strange it is to be anything at all


Everyone tells stories about themselves and why they exist. Some of these are true: “I am a mother and these are my children.” Some of these aren’t: “I’m going to strike it rich next time I play the lottery, and then I’ll be happy.” Some people insist on a story of the world that places them at the center of all of everything that has ever been: “God made the Earth for the sole purpose of harboring the human race, all of human history has converged on this generation, which is the Last Days, and I am among God’s spiritual elite!”

These stories are where people find this nebulous thing we call “meaning,” which is why some people will insist that it is impossible to have meaning without religion, i.e. their preferred story. However, people derive meaning from their own personal stories about their place among the people closest to them even if they have no religious narrative, and even among the religious there are often stories that are more significant, for example parenthood. Some people care quite a bit about whether or not their stories are true; others believe what they do because it fills a certain place in their lives. I am one of the former: taught from an early age that the Truth (that is, my parents’ religion) was to be the central point of my life, I find that I cannot believe something if I have no reason to think it is true. At the same time, although my relationships are important to me, I have never considered my role in life to be primarily relational, so while it is true that I am a daughter, a sister, a friend, I need a different story to find meaning.

This, then, is the story I tell myself.

The universe is a place much bigger than I am, but I am a part of it. The elements that make up my body existed before my brain organized into a machine capable of thought, and they will exist after I am dead. I used to feel like I needed to Make a Difference in order for life to be worth living. And I still do, to a certain extent; I wish I could be famous and important and significant to other people as much as anyone. But even if I were to die tomorrow without any great achievements to my name, my life wouldn't be worthless, because I am part of the world, and its a beautiful world. And the atoms of my body, which used to be part of stars and dinosaurs and trees, will move on to be parts of other things.

There is no Fate driving events; my existence is contingent on more factors than I can count, none of which had to turn out the way they did. My birth was a zillion-to-one chance, and my existence here today, as myself, is a great stroke of luck. This doesn’t mean that I should settle for mere subsistence as my highest goal, but that I temper my pessimism and grimness with an acknowledgement that it is a joy to be alive. No matter what horrible things are done on earth the stars are still beautiful, and no matter what pain and ugly death I might have to look forward to, the world is still a breathtakingly beautiful place and I am lucky to be a part of this incredibly improbable symphony of life.

I am not a scientist, so I cannot personally prove that this story is true. But this story is falsifiable; I don’t take it on faith, I tell it because it is consistent with all of my knowledge of the world. In my limited experience with life, I have found that the most important thing I can do to make my life better is to face the world exactly as it is. No comforting stories, no inflated sense of self, no groundless hopes OR groundless fears. This is what’s real, and it is enough.

Thursday, July 17, 2008

What I Know, Part 1


Elizabeth asked her readers a while ago to share what they know about the world. I’ve been turning this idea over in my head, asking myself if what I know about the world is true and worth sharing. I’m not afraid to argue politics or religion, but writing responses to other people’s ideas is much easier than forming my own ideas out of thin air. I am vain; I worry that what I‘m writing here isn‘t any good. Nevertheless, here I go.

When I turned 18, I went out and got a tattoo that I had been planning for a long while, that I had drawn myself. The tattoo was a picture of a dragon, something like the sketch at the top of the post, and the primary inspiration for it was the book The Hero and the Crown. The relevant part of the story goes like this: Aerin kills dragons, which are small, mean vermin. It is nasty work, not fit for a lady like Aerin, but she does it so that she has something that she is the best at, to earn a place in her father‘s house. She is the only one who kills dragons, so when the dragon Maur comes down out of the mountains, big as the sky and capable of swallowing a man whole, she is the only one there is. So she goes out, though she thinks she cannot win, because she must. And she kills him, but he burns her in the process, leaving her grievously injured so that she and everyone else think she will die.

The story gets less grim as it goes on, but the grim part was the most formative for me. Sometimes, see, when you ride out all proud with your head held high, the dragon kills you. Sometimes the hero dies. Even when you succeed, sometimes success and failure look a lot alike. Life is brutal and ugly and exhilarating and beautiful in equal measure, and you can’t separate these qualities from each other. All you can do is face life with courage and endure the pain for the sake of the beauty.

I took this knowledge in two ways. First, looking to the future: I got this tattoo to remind myself not to shrink from something because it looked difficult or unpleasant or impossible. If success and failure look alike, then the thing that looks like it will be your greatest defeat may turn into your greatest victory. It is impossible to tell the future, so you ought always to advance in all things with your head up, eyes forward, taking your fear in your hands and refusing to be mastered by it.

Second, looking back to my past, my dragon tattoo was a reminder that although the world around me might not notice, I have faced and overcome things that could have killed me. See, I used to self-harm. I had a chunky red pocket knife I used to slice my arms and legs open, I had a set of candles I would light and use to heat up little bits of metal or wood to burn little circles into my skin. I remember one night in particular. I was twelve, and I stayed up past midnight so I could use the bathroom while my family was asleep, because I had to clean up blood I had dripped all over my bedroom floor and find some way to close the gaping hole I had put in my shoulder. I still have the scar: its about an inch long and a quarter inch wide, although I‘m sure it would have healed thinner if I had gotten stitches. Getting into all the reasons why I used self-injuring as a coping mechanism is complicated; I could write a book on it without making my motivations clear, I think, but the point is that it was something I used to help myself cope with various pressures on my sense of self.

I don’t remember when I started self-harming, but I remember when I stopped. I came to a point where I realized that although self-harm may be a coping mechanism, its not a very good one. I wasn’t happy with the situation, so I just… stopped. Cold turkey. The short-term consequence was a dramatic downward spiral into, as the shrinks say, suicidal ideation, and then a much slower trip back up as I deliberately learned other ways to cope with the pressures I couldn’t change, and learned to change the things I had power over. It was messy and amateurish, sometimes silly, sometimes pathetic, and perhaps not as wholly successful as I wanted, but here I am. And the dragon is dead.

Tuesday, July 15, 2008

pull the tricks out of our sleeves

For various boring personal reasons, I'm looking into creative ways to live under a roof with an income of about $750/month. So far I've come up with:

  • Working as a nanny for a family with one or two quiet school age kids in exchange for room and board. This plan hinges on the kids being extremely easy to take care of and no one needing me to clean or cook anything on a regular basis, but I think if there was a family out there who understood chronic pain... so basically its a very long shot.
  • Living in the projects. Specifically these projects. The major drawback to this plan is the huge waiting list for spaces. That, and the fact that making my way through government paperwork gives me a blinding headache just thinking about it.
  • Buy some cheap rural land and live in my car while slowly building a tiny house like this one from the Tumbleweed Tiny House Co. Making this affordable might be impossible, and living in my car would be uncomfortable, but this is the solution I like best in the long term. My dad has done a lot of renovations on his house, and I know he and my brothers would help me were I to try to build a house like this, so building it might not actually be that hard. Just the money would be the issue, really, and the VA does cheap-ish home loans... but this one is a bit far-fetched.
  • Living with my parents while I fight the VA for the full benefits to which I am entitled. This is what my parents want me to do, but I have to say, I'm not enthusiastic.
My other real option is to forget about the roof over my head, take off in my car and live in a Walmart parking lot somewhere. It would be an interesting life experience, I'm sure, but I think it would freak out my parents a little bit, and I'm actually afraid that if I do the homeless thing I'll get too separated from normalcy and I might have some trouble getting back to normal if the situation ever improved. Also, being homeless is quite dangerous for women, or so I hear.

If anyone has any ideas to add to the list, feel free to share.

Saturday, July 12, 2008

painting in a cave

My family has fundamentalist tendencies, although they've gotten better in the years since I moved out. My parents are very active in their Assembly of God church; my dad is a deacon, my mum teaches Sunday School and they're usually at church more than once a week. They also used to be pretty right-wing, although they're not so much anymore. When I was sixteen, my parents regularly gave money to, and got junk mail from, crazy rightwing organizations like Concerned Women for America and whatever organization Pat Robertson runs, but these days, although they still get some of that stuff along with pleas for money from the local Republicans, they also get junk mail from Planned Parenthood, and I think most of their charity money goes to overseas missions work that focuses on relief stuff like building up communities heavily impacted by AIDS. And my dad told me the other day that he is definitely thinking about voting for Barack Obama because, although he doesn't feel Obama's position on abortion is moral, on almost every other issue he thinks Obama is better. So basically my parents are extraordinary evidence that fundamentalists can also be good people.

Anyway, the point of this is that I have a younger sister, J., who is in high school (she may have two or possibly three years left, I kind of forget), and she's homeschooled. Contrary to stereotype, although she is very bright, J. has little interest in academics and would rather be hanging out with her friends or practicing dance- she's taken ballet for maybe six years- than studying. My mother is a brilliant woman and a great teacher, but she isn't fond of battles of will, so she has suggested that next school year I ought to tutor J. in at least writing. The writing I produce isn't particularly impressive, but I remember high school English as being ridiculously easy, so even if my brain is a bit unreliable these days, its not a crazy idea. I do know good writing when I see it, and I have a decent grasp of things like grammar and spelling, so I'm thinking about taking her up on it.

Before I commit to what is essentially teaching a high school level English course, I feel like I ought to have some idea of what I would be doing, so I'm developing ideas about how to teach J. what she needs to know, which is primarily essay writing and probably some basics of writing a research paper. She really loves ballet- she's actually at a month-long ballet camp right now- and so I'm thinking I could do something with a list of blogs that write on dance. I don't really read dance blogs, but I know they're out there, and if Wheelchair Dancer is any indication, there is a lot of cultural analysis available in the field of dance. I think I could probably teach J. a basic five paragraph essay format and then get her to explore the way people actually write essays. A quick search around shows that there are also a host of controversial-ish dance topics to make her write persuasive essays on, like this for example.

Maybe I'll even make her start her own blog, and have her post her essays there. It would allow me to easily review her work from anywhere in the world, which may be useful if I end up someplace warm for the winter. I wouldn't be surprised if being involved with an online community of dancers, or whatever topic she likes, was a good motivator for writing, too.

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Obligatory kitten picture!

Wednesday, July 09, 2008

everything and nothing at the same time

Ok, so when I said regular posting might resume soon, maybe I meant a rather cosmic value of soon. My life is in a bit of a weird place at the moment, and my parents' living room isn't the best place for revealing my most dearly held beliefs OR for cursing at politics, which is about 95% of my blog, really. That and pictures of flowers or kittens. If this state of affairs continues I may need to acquire a laptop computer instead of this huge desktop. However, my parents are going out of town for a week and I may soon have the opportunity to blog like I'm a real adult with my own place to live.

In the meantime, I thought I would point out a couple things I've been reading. There are stories that are just a joy to read because of the way they're told, and there are ideas that make you feel like before you heard them you never really understood the world, and today I've got a couple examples of such excellence.

First, The Authoritarians, by Bob Altemeyer, which I discovered via comments at Slacktivist, although I now no longer remember who linked it. Anyway, its a fascinating look at what makes people tick. The entire thing is online, and free, and it's quite worth the read, especially if you ever have to interact with other humans.

Also sort of via Slacktivist, I've been reading Accidental Historian, the author of which comments at Slacktivist as Geds. This blog is yet another example of a writer who is orders of magnitude better at storytelling than I have ever been; its almost enough to make me despair of ever reaching the quality of writing to which I aspire. Although, honestly, it would take more than despair to make me shut up, so I guess I won't quit writing anytime soon.

Last but not least, there is Yarn Harlot. I kind of feel like I ought to have discovered this blog a long time ago. I guess I'm slow, and perhaps a bit in denial of the fact that I'm turning into a crafter exactly like my mum. I'm also afraid that if I start reading yarn blogs I'll end up with so many ideas for projects that I'll have my free time from now until I turn 80 scheduled out before I can stop the flow of ideas. Creating things with my hands is a great feeling, but I feel better when I have only one project at a time.

Speaking of which, my current project is nearing completion. I'm making a laptop sized messenger-type bag with a couple pockets. This photo of it is pretty current; it looks humongous because it is at the moment. The plan is to felt it, which will make it much smaller.

Monday, July 07, 2008

back in the world that moves

I haven't posted in several days due to preparation for/celebration of/recovery from the Fourth of July. Obviously, since you're reading this blog, you know this. I would like to write more often. My head is abuzz and I have several posts I would like to empty out of my tired brain, but I have been wasting time sitting on the floor of the laundry room petting kittens. So, in lieu of grand thoughts, here are some pictures of kittens. They're four weeks old and within the past couple of days transitioned into the phase where they attack their own shadows.



Regular posting may resume soon.

Tuesday, July 01, 2008

Saturday, June 28, 2008

Cold Hard Reality

In the past couple of days I've read Molly Ivins' Bill of Wrongs and John Grisham's The Innocent Man, and I think I've had my dose of cold hard reality for a little while. But before I retreat to my hammock to read pulp fantasy novels, I just have to comment on this post at Obsidian Wings, "Unless a Solder Has a Personal Fortune...". The post quotes an Army Times articles to emphasize how little disabled vets are left with after they're discharged; it amuses me that the article gets it so wrong, like while the writer wanted to bring some light to how vets are treated, she couldn't bear to actually admit just how bad it can be. Hence, this quote:

(I)njured service members are discharged on just a fraction of their salary and then forced to wait six to nine months, and sometimes even more than a year, before their full disability payments begin to flow. (...)

Most permanently disabled veterans qualify for payments from Social Security and the military or Veterans Affairs. Those sums can amount to about two-thirds of their active-duty pay. But until those checks show up, most disabled veterans draw a reduced Army paycheck.
It gives the impression that a disabled veteran, upon leaving her military base with discharge papers, receives a reduced paycheck until the VA and/or SSA get their shit together to evaluate that veteran. And once the VA does evaluate that vet, which happens within a year, she can expect to actually get two-thirds of her active duty pay. And this is supposed to be an example of the system failing- which I guess it is. It makes me wonder if the writer even realizes that this horrible scenario of hers is orders of magnitude better than what happens to many, many vets.

Just to be clear: I have never heard of a vet receiving a reduced Army paycheck after discharge. Maybe that happens if you get a certain disability rating from the Army on discharge; when I was discharged, I got a zero rating from the military board although I was only able to work part-time at a civilian desk job at the time, and I was told that the military board often gave soldiers zeros when they deserved much higher disability ratings. The policy was to give soldiers as little as possible from the Army and just let the VA deal with them. So maybe you get a bit of an Army paycheck if you're a combat amputee or something, but your average disabled vet doesn't.

So you get out of the Army with maybe some severance pay, a few thousand dollars or so, and it takes the VA 3-4 months to get you into the system so you can apply for disability benefits from the VA, and then the VA takes a year or so to decide your claim. But the VA also has a policy of minimizing payments for disability, and so its quite likely that if the VA even admits that your medical problems are service-connected, they'll minimize your symptoms, and therefore your payments, as much as possible-or more. (The most recent example of this in the news was the hearing on VA administrators directing their subordinates to find that vets with PTSD had "adjustment disorder" in order to save on compensation costs.)

So you've been out of the military for a year, not working because of your disability, and you get a disability rating of 30% or 40%. So you appeal, but appeals don't have a time limit at the VA- they have no incentive to process your claim, so it gets tossed on a pile, and maybe a couple years later someone looks at it. If you're lucky, that someone will take the facts into account and get you the compensation you need; if you're not lucky, they won't, so you appeal again and the wait starts all over- and you're still living on $512/mo.

This is what really happens, this is how vets are really treated. It destroys people's lives and is an absolute disgrace; it irritates me that all anyone talks about are best case scenarios.

Tuesday, June 24, 2008

Ice Cream!

Many of my family members are allergic to milk. My dad is so allergic that he doesn't even eat milk chocolate, but most of the rest of us get at least a slight stomach ache from drinking milk or eating it on cereal or wev. For a long while, we used soy milk, but only my dad was willing to drink the stuff; it was horrible. And soy ice cream is just not worth eating. However, because of the recent mainstream interest in organic food and anything that can reasonably claim to be "all- natural," goat's milk is available even in the local mainstream grocery store. Goat's milk isn't exactly as tasty as cow's milk, but I like it much better than soy milk, and, most importantly, its creamy enough to make decent ice cream.

I made some vanilla-cherry ice cream first, but I don't have pictures from that batch. This is the peppermint ice cream that I made on Sunday. Once enough ice has been frozen to make another batch, I'm going to make some more, either mango or plain vanilla. The thought of making just plain vanilla ice cream is a bit sad, but my dad likes it so I'm considering it. He likes mango too, though, so we'll see how inclined I am to stand up and chop up mangoes into little pieces when it comes time to make the next batch.

I smashed up pieces of peppermint candy to toss into the ice cream.

My mum's ice cream machine is about 30 years old. It still works great, though.

I made a half batch so it wouldn't overflow the top before it was churned enough to be creamy. Even using whole goat's milk isn't quite as creamy as using heavy whipping cream (go figure), so the longer it churns, the better.

Saturday, June 21, 2008

the liquid that we're all dissolved in

AiG's Ken Ham on PZ Myers:

What’s he so worked up about anyway? If he’s right, God doesn’t exist—so prayer can’t do anything and, therefore, can’t harm anything. But, then, who cares about harm in a world without moral absolutes? It’s the survival of the fittest; so, evolution will inexorably eliminate these weak-minded “idiots” at the Pentagon. If they nuke some people along the way, so what? That’s just the death of the weakest in this purposeless accidental existence of ours; sooner or later the more fit will triumph, and the world will be more evolved. So, what’s Myers concerned about? This is all just time and chance and the laws of nature at work. What is, is. There are and can be no “oughts.”
This is a fairly common concept in American culture: those who reject God also necessarily reject all morality and concern for other people. I have heard people claim that atheists are unable to love their spouses, parents or children, and like Ham here suggests, atheists ought to have no problem with just killing people at random for no reason. In fact, evolution demands that anyone who admits that people evolved actively desire the murder of those "less fit" in order to continue the evolution of the race toward a better goal. Nevermind that this kind of teleological view of the world is a profound misunderstanding of what evolution is; the implication that I'm some kind of murderer just because I reject Jesus, well, it irritates me.

There is this concept in philosophy- I encountered it while studying linguistics- called Theory of Mind, which is essentially the ability to imagine that other people have minds much like one's own even though you can't directly experience another's mind. Without this, much of social interaction including things like language and commerce would be completely impossible; it is the basis for all of society, and all neurotypical (and at least almost all a-typical) humans have it. Empathy is a closely related ability.

Religions tend to disguise it, with ceremonial laws and proscriptions against things that are said to offend God although they hurt no one, but they can't disguise it completely: the theory of mind is the basis for morality. "Do unto others as you would have them do unto you," and "Love your neighbor as yourself," are not concepts that must be revealed in a holy book, they are accessible to everyone with a human brain, simply because we are able to imagine what it might be like to be another person. Morality doesn't require divine intervention, or supernatural woo, or special revelation. Religion has added those trappings onto what everyone is able to know: if you want to know what is right, consider how your actions affect those around you, weighing the effects on others with the same seriousness as the effects on yourself.

Empathy is a scary thing; it is often painful and frustrating to put yourself in someone else's place, especially when you don't have the power to change the things that are causing that other person pain. It takes a great deal of effort to learn someone else's history, to understand all the forces at work in someone else's mind. And when your actions affect whole swathes of people, the determination of what is right is very complicated. Morality isn't easy or simple, but it doesn't require the supernatural.

Religious people who insist that divine revelation is the only source of morality either have such an atrophied sense of empathy that their understanding of morality has withered, or they are deceived and are trying to pass that deception on to others. Or both, I guess.

Thursday, June 19, 2008

A short, ugly dose of political reality

So the Supreme Court recently decided a case, Boumediene, regarding the rights non-citizens detained at Guantanamo Bay have to challenge their detainment in court. Pretty basic habeas corpus stuff, and I think the decision was made correctly: the Supreme Court ruled that in fact our government does not have the right to hold people indefinitely without charge. Western civilization has acknowledged this right for at least the past, what, 800 years? (Wikipedia says since the 12th century) and I'm glad we're not going to throw it out just yet.

Of course the neocons are freaking out. Glenn Greenwald has a nice bit on John Yoo's take on the case; the best quote is "It takes an indescribably authoritarian mind to believe that one's own Government should have the power to put people in cages for life without having to provide them any meaningful opportunity to prove that they did not do what they are accused of." Yoo, apparently, like the rest of the Bush administration, is just that kind of authoritarian mind.

McCain, too, disagrees with the Boumediene decision. Here's Time's reproduction of his campaign's official statement. The core of it is this quote: "The United States Supreme Court yesterday rendered a decision which I think is one of the worst decisions in the history of this country."

John McCain's America is one where the government can put people in prison for life without any kind of trial or court action. His statement against Boumediene is a statement against the founding principles of the Constitution and is against everything our nation stands for. Maybe its hyperbole, but I'm strongly tempted to say that anyone who votes for this man is a traitor, and I find it greatly distressing that he is a major candidate for President.

Wednesday, June 18, 2008

J's cat's kittens






They're almost two weeks old, most of their eyes are most of the way open, and they're starting to get feisty although of course they're not strong at all yet. When they're in their box they totter around on wobbly legs, crawling all over each other, but for some reason when you hold them up in the air to take their picture, they cry. They won't look at the camera any other way, though: they can't hold their heads up consistently yet. I'm sure it will only be a couple of days before they're out and about causing trouble, though. These kittens have been growing up awfully fast.

Sunday, June 15, 2008

far away, the thudding of the guns

I used to memorize poems sometimes, just because I wanted to know them. I think maybe I will see if I can memorize this poem I read today. Sassoon was never a favorite of mine, but this poem is quite striking.


The Death Bed, by Siegfried Sassoon

Saturday, June 14, 2008

Some Pictures from the Trip

Some people say South Dakota prairie is boring, but I have to disagree. The way the wind blows the grass makes it look like the ground itself is alive.


The hills in Wyoming reminded me of Brokeback Mountain, and I teared up, again. I'm such a sucker for sad stories.

Montana was a bit colder than I expected- that's snow on the hills there.

And even more snow!


I love the Decemberists, so when I saw Tarkio's namesake I had to stop.

Turns out Tarkio is on a river that is absolutely gorgeous.


I believe this may be the Columbia River. There was a turnout by the highway with this incredible vantage point. The eastern Washington desert is just brilliant.

You know you're home when the trees are bigger around than you are tall. Also when the temperature drops and everything becomes shrouded in mist. Western Washington's climate is a real downer, but it does produce some beautiful landscapes.

Saturday, June 07, 2008

A Gorilla on the Road

There was this post for BADD, by Mary at This Is My Blog, comparing having a disability with having a gorilla living in your house with you. I find it a very apt description of the process of "taming" your illnesses and injuries until you're able to cope with them in a practical way. Anyone interested in a vivid illustration of what it means to cope with a disability should read that post.

I think in the past year I've come along way in managing my life. It's helped that I haven't been putting pressure on myself to go out and get a regular job and fit into a regular life; in some ways getting the Voc Rehab people to admit that I'm not rehabable has improved the quality of my day-to-day life. I've been able to allow myself to slow down and take all the time I need to get places and do things, but more importantly, I've changed the things I try to do.

And now it's summertime, the time I feel the best, and I'm contemplating taking my new openness to life onto the next level. I've written here before about my desire to travel, and about my poverty due to the VA's denial of the reality of my condition, and now these two things have come together fortuitously. My husband and I will soon be out a place to live due to various factors, and my tentative plan is to start a grand journey, camping out of my car and exploring the world a little bit at a time. My gorilla and I are going on the road.

First stop will be my parents' house outside of Seattle, possibly for several weeks, and then I hope to head south. The trip from here to Washington will take me several days; its my trial run to make sure that I can actually handle sleeping in the back of my VW and driving around strange places without getting too stressed out. Maybe the trial run will fail and I'll be stuck living in my parents' attic or something, but I have high hopes, and faith in my hard-won coping skills.

I also hope that this may help my husband. Quite frankly, while I have made friends with the gorilla in our house, he hasn't. It would have never occurred to me, before, that the person with a seriously life-altering physical event could adapt to the changes in their life better than someone who just has to sit and watch the person affected. But a gorilla in the house fixated on your housemate is still a gorilla in your house, I guess, and he's had a hard time. I hope that giving him some time where I'm not sitting around being sick at him may help him out.

I realize that all my high hopes may be a little foolish, brought on by sunny days and a desire to choose to be optimistic, but even if things go horribly wrong, I'll still have a nice visit with my family and some neat photos to share when I get onto a computer again. My sister's cat had kittens like two days ago, so when I get there they'll be a week and a half-ish old. Honestly, I'm about as excited to see those kittens as I am to see the rest of my family, how sad is that?

Sunday, June 01, 2008

Remembering Discrimination

I have this theory about how people remember pain, and how those memories are recalled and used in daily life. I've written about it at length here, but basically the idea is this: pain is a traumatic experience that would harm the mind if it were remembered clearly, so the human brain regularly blurs the memory of pain so that it is more remote. Its easy to remember the fact that pain is unpleasant and distressing, but its not at all easy to remember the actual sensation. My evidence for this theory is both my own experience with chronic pain- which is difficult to remember even when I experience it every day- and also signs in the relatively healthy population that indicate that people don't remember the pains they've encountered in the past, things like drug laws that severely punish chronic pain sufferers, doctors who consider a set amount of daily pain to be perfectly acceptable and not worth treating, people who are otherwise compassionate who just assume that chronic pain sufferers choose not to engage in certain activities simply because they are lazy, and so on. People act like they have no idea what pain is, because they really don't remember it when they aren't experiencing it.

I have a more tentative corollary to this theory: discrimination is like pain in that it is a traumatic experience that is difficult to understand unless you are currently on the receiving end of it. I used to be pretty sure that this was true, but now I'm not as sure.

My evidence in favor of this theory was my experience with disability rights activism. As I've said before, my acceptance of my disability has transformed the way I see the world, my place in it, and the place of other people. I have a stronger sense of the goods of society, which includes a much better understanding of all the ways those in power discriminate against out groups on the basis of race, gender, religion, etc. I understand sexism and racism better because I understand disablism. Obviously there are differences between various outgroups, and there are a lot of ways in which being female, or being gay, or being Latino, or whatever, is not at all like being disabled. But I think that, for example, understanding the ways in which being seen as a "good" crip (that is, inspiring but not socially challenging, asexual and passive and dependent) is just as marginalizing as a negative stereotype, helps me understand how being seen as a "good" woman (that is, motherly and submissive, pretty and a good cook) can be just as marginalizing as negative stereotypes of women. And I think that knowing the cost of trying to "pass" for perfectly healthy helps me better understand what it must be like for a homosexual person to "pass" for straight: not only is there the cost in physical pain, but I have to avoid talking about most of what my life is like, hiding the things that are important to me for the sake of the social comfort of the person I'm talking to. Obviously it's not the same. But I think its similar, and while my understanding of discrimination in all it's forms certainly isn't perfect, its better than it used to be.

The thing is, though, that political events of the last few months have clearly proven to me that experiencing discrimination yourself doesn't necessarily bring understanding of the discrimination that anyone else experiences, even if you understand what is going on in your own situation. When the Democratic primary races started, I assumed that in general people who voted Democratic would think more or less along the same lines I do: people who experience discrimination on whatever basis have more in common with each other than with people who don't experience discrimination regularly. So white women are more likely to have philosophies and voting patterns in common with minorities than with white men. And as far as I know this has traditionally been the case (although its not like I'm an expert on election history). The Democratic party is the party of women and minorities and the poor and those marginalized on the basis of religion or gender or any damn thing, right?

But it seems like I was wrong. It seems like there are a lot of people out there who think that the best way to achieve power for their particular marginalized group is to crowd out anyone else. There is a particularly nasty video making the rounds of a Hillary supporter making racially based arguments against Obama, and the Hillary Sexism Watch at Shakesville is up to installment #104. All this infighting makes me think that I am entirely wrong about the instructive value of discrimination. Maybe its just that you have to chose to learn, and then you have to chose to generalize from your own experience to others' experiences. Maybe we're just not brave enough to empathize with others who are in pain.

I also don't think that this is likely to work, as a political tactic. I mean, as a chronic pain sufferer, if I want to accomplish a political goal like, say, increasing funding into research on pain and brain function, my best bet is to include everyone who suffers into the same coalition. When it comes to policy and social movements that benefit those with chronic pain, there is no difference between people with arthritis, people with migraines, people with phantom limb pain, people with fibromyalgia, or people with diabetic neuropathy. I believe it is the same for those who are trying to fight discrimination. We all have the same goals, and forcing divisions does no one any good.

Friday, May 30, 2008

dumbstruck with the sweetness of being

My sleep is all messed up again, so this morning at about 5:45, as the sun was just starting to shine through the haze on the horizon, I took a walk around the block with my trusty camera. I took fewer pictures than I would have liked, since apparently civilized people get up and go to work as the sun rises, and I thought I might get caught examining someone's garden as they came outside, and I chickened out.

Here's a few of my favorites though. I really am fortunate to live in a place where people have space to grow gardens; well, I suppose I'm fortunate to live anywhere at all.





Thursday, May 29, 2008

With all the poise of a cannonball

I have been reading a book of short stories by James Tiptree, Jr., aka Alice Bradley Sheldon, science fiction author and gender-bender extraordinaire, Her Smoke Rose Up Forever. Tiptree included gendered themes in most of her stories, and its got me thinking about this idea that women are innately less violent than men.

Also, it was just memorial day last Monday, and I have been watching the first couple seasons of Battle Star Galactica, which has introduced me to the indomitable Kara Thrace. I'm not sure I will be able to finish watching BSG, I'm that in love with Thrace, and the President, and all the other women in that show who love to fight. Seeing such a positive portrayal of war, and particularly female soldiers, just about breaks my heart with the desire to be a soldier.

Its crazy, I am aware of that. I hated the Army when I was enlisted, I hated being ordered about by incompetent people half as smart as I was, and even if I was completely physically fit there are a dozen other reasons why I could never join the military again, starting with my disgust for the war criminals at the top of the chain of command and working out from there. Nevertheless, there is this tug on my heart that is hard to explain. I want to fight.

The human urge to destroy is discouraged in women, we are supposed to be nurturers and care-givers and all that, but I don't believe that this is a biological fact. Were the social pressures reversed, I am convinced that women could be-and are- just as vicious and destructive and violent as men are supposed to be. No one human is immune from the desire to kill.

So, as compelling and interesting as Tiptree's stories are, the Memorial Day piece (or piece that I read on Memorial Day anyway) that made the biggest impression on me was this article from 2 Dinar, The Casualties of War:

In reality, I was, and remain, wracked with guilt and insecurity- different than survivor’s guilt and far less noble. This is the guilt of leaving to pursue another career when the Corps needed strong leaders like me. The guilt of not having gone all-in when gambling with my life; of not having been catastrophically injured. The guilt of not having killed and the guilt of not living with the timeless veteran’s regrets about his killings. The guilt of being indifferent to the hundreds of opportunities available to me because they all bored me and all I wanted to do was fight.
War is a powerful thing, sweet and compelling. I'm not sure why- I have a dozen theories, about population pressures and sin, ecological change that spurs migration and religious stereotyping- but the fact remains. In spite of everything I know about how life ought to be, sometimes what I really want is a situation where I can get away with starting a fight.

Saturday, May 24, 2008

Count every beautiful thing we can see

Elizabeth asked her readers- her friends- to go out this weekend and do something living. I scrounged up some batteries for my camera and went to the park. I got some really crappy pictures, and this one.


These plants are dry and brittle and brown. Dead.

When I uploaded this photo and saw it full size, I was reminded of this piece of art, a sculpture by Richard Johnson titled "Parasite (The Thing Within My Spine)." Wheelchair Dancer pointed me to this exhibit of artwork on pain, and I've been meaning to write about it in terms of the success of the representation of physical pain in art, but I've been putting it off because although most of the art in this exhibit is very good, only a couple pieces even come close to actually evoking physical pain. This sculpture is good- seriously, go look at it, read the artist's description- and I love that this photo resembles it, because in this photo Pain is Beauty.

I need that today. I guess this doesn't really fit the directive to go out and do something fun; this post is fundamentally depressing. But, my head feels like I've been run over by something larger than a golf cart but smaller than a semi-truck, my throat is on fire with heartburn and the antacids are doing nothing, my hands are bruised and aching, my neck is radiating pain down to my lower back, my hips are out because I walked around the park this morning, and like a goddamn idiot I went and got a massive sunburn on top of everything else. I am the incarnation of pain, I am panting with it, and in this picture pain is elegance, delicate and architectural.